I don't know how old your daughter is, but I think you're on the right track.
I have had my ostomy just 7 months (today!) and I don't ever regret it. Yes, you have to be careful about
dehydration...but with constant diarrhea, that's obviously a worry even with a colon! After a few months you can eat almost anything.
My biggest complication is RARE and not really something you should even think about
2 months after my colon removal my intestines twisted up like a balloon animal and I had emergency surgery to correct my blockage and revise my stoma. It was awful. But supposedly extremely rare. Even when that happened, I still never regretted my surgery.
I hope you can get your little girl feeling better soon!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).