recto-vaginal fistula

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2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 10/15/2010 6:55 AM (GMT -6)   
hi all,
i have what seems to be a recto-vaginal fistula. ever since my loop ileostomy op on July i've been having mucus and gas coming out of my vagina and sometimes also gas from my bladder, and also when i get my cycle, blood is going from the vagina to the rectum. it's not diagnosed yet, but the symptoms indicate a rectovaginal fistula. i have a vaginal U.S on the 24th. has any of you girls out there ever had a rectovaginal fistula? and if so, how was it treated and was this treatment successful to eliminate the fistula?
 
i've also heard of a TRUS test. does anyone know what is that test and how it is done?
 
thanks.

Scott Crohnie
New Member


Date Joined Jan 2010
Total Posts : 16
   Posted 10/15/2010 5:17 PM (GMT -6)   
Unfortunately, I've had the guys version of this. I had a fistual joining my bowel to my bladder and to my stomach. When I went for a pee I would have gas and small particle of waste in my urine. Its just about the most horrible thing I've experienced with Crohns and I also had waste coming out from the fistual opening on my stomach.

I was sent for a CAT scan which confirmed what I already knew. My bowel was in a bad way by that point so I had surgery to remove the fistula and part of bowle surrounding it. I have not had any problems since then.

I've also had other fistuals which they used flagyl to treat but this did not work and had surgery to remove them as well. I think I would be right in saying that people have been put on infliximab to treat fistulas.

If you have any other questions please ask. Good luck!

crohnielass
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Date Joined Mar 2009
Total Posts : 1118
   Posted 10/16/2010 1:56 PM (GMT -6)   
Hi, there are people on the crohns forum who suffer with these type of fistula's that maybe able to explain the TRUS test and give you some advise I have fistula's that come through my stomach. As scott crohnie said most people are put on Infliximab as this is a good drug to help dry them up. Im due to start h.umira next week for the fistula's as i had a reaction on infliximab good luck Bev x
Diagnosed with crohns at 13, right Hemicolectomy in 93, remmision till sept 08, small bowel resections & fistula excised, along with temp stoma in 09 stoma reversed 2010
Meds: 8 week course of pred 20mg, Azathioprine 50mg, starting Humira 20/10/10 Lomotil, citalopram 20mg, questran & VSL#3.

“I may not be where I need to be but,
I thank God I’m not where I use to be “

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 10/17/2010 7:54 AM (GMT -6)   
thanks for your replies guys! Scott, glad it was successful for you :) Bev, i hope it works out soon. i had bad symptoms in the first 3 mons post op, but stragely in the last 2 weeks it all of a sudden stopped, so im thinking maybe not to do anything about it for now, cuz it seems my fistula has calmed down. maybe it's a small one? i think i'll wait and see, and as long as it doesn't come back, i won't do anyting.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 10/17/2010 5:18 PM (GMT -6)   
Hodaya,

I had a R/V fistula for several years. It was awful and finally caused an abscess on my right butt cheek, which was the most pain I've ever felt. cry I had surgery to drain the abscess, and that was why I got a temporary ileostomy, to bypass that area, so it could heal without getting infected.

The fistula only went away when I had my colon and rectum removed. Before then, I tried Remicade for several years and surgery to repair it, but neither worked. I hope yours is gone for good.

Take care,

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/18/2010 11:15 AM (GMT -6)   
thanks so much dear Cece! boy i'm glad you don't have it anymore, sounds like you had a real nasty one.. i'm not sure what to do, cuz lately i hardly feel any symptoms, so i'm thinking maybe it's best not doing even any tests, cuz it seems to me like all these test and protruding into our bodies only make things worse. so i don't know, i think i'll leave it alone and see how it goes. i don't have stools in my rectum any more anyway, so maybe it'll be ok..?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/18/2010 7:50 PM (GMT -6)   
Since your symptoms have gone away, I would wait to have any tests done. They are usually so small that the doctors have a hard time seeing or finding them anyway. Hopefully, yours will heal up on its own. :-) Mine was a bad one, but it all worked out for the best!

Hugs,
Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 11/4/2010 7:41 PM (GMT -6)   
well i have one and i have an ileo but i still experience odor and don't know what to do about it, its really effecting me mentally and emotionally
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/4/2010 8:12 PM (GMT -6)   
Praying4Healing,
Do you still have your colon and rectum? My r/v fistula didn't go away until I had them removed. It takes a few weeks to recover from surgery, but it's worth it in the long run to be done with all of the problems associated with Crohn's.
Take care,
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/4/2010 8:58 PM (GMT -6)   
     I had both my colon and rectum removed but the surgeon left the anus intact.   The day I came home from the hospital I felt like I had to urinate.  When I went to the bathroom all this horrible smelling gunk came out of my vagina.  I thought my bag had broken because that is what it looked like.  Ever since then I have had leakage.  At first, it looked like blood but it was more pink looking, sort of like the drainage that was in the JP tube.  That went away after a stint on antibiotics but I still had mucus.  My surgeon tells me it is coming out my anus but I know my anus from my vagina.
     In September my surgeon removed a hematoma from my anus and drained it..wow, did that ever hurt.  Well, I think it is back.  He sent me for a CT scan of the pelvic area back in September to rule out blood build up.  If it were a fistula, wouldn't it show up on the CT scan?  This is sooo annoying.  I went back on the Flagyl and have an appointment with my surgeon this coming Tuesday.  Mucus is still coming out but not as much.  I can feel something just is not right in the anus.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 11/5/2010 3:40 AM (GMT -6)   
Christine, from talking to a woman who has crohns and has a chronic fistula, she sais r/v fistulas are hard to reveal even on ct or mri. i know she has a pretty bad one, but it took a long time for the drs to find it. she sais her dr actually yeld at her telling her there's nothing wrong with her, cuz the tests showed nothing and sent her out of his office... but one day he pressed with his fingers somewhere on her pelvic and lots of mucous with blood came out from her vagina - then he believed her.... just unbelievable what she had to go through till he finally believed her.

i hope you get your issue sorted out soon. let us know and feel well!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/5/2010 5:42 AM (GMT -6)   
Hodaya is right. They are very hard to detect, since they can be so tiny, yet cause so much trouble! shakehead

The one thing that seemed to help mine for a while was Remicade. But, my body developed antibodies against it after a few years, and it stopped working. Once that happened, the Crohn's flared up with a vengeance and the r/v fistula came back, causing an abscess on my butt cheek.

That was the start of my many surgeries, first to drain the abscess, then to get a temporary ileostomy, and then to have my colon, rectum, and anus removed (proctocolectomy). In hindsight, it was the best thing that could have happened, because now I'm completely healthy.

Christine, I'm so sorry you're continuing to have drainage. Would you be open to having your anus removed? I think it would solve your problems down there.

((Big Hug))
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/5/2010 4:48 PM (GMT -6)   
     churchlady...I am a little annoyed that the surgeon did not sew up my anus at the time of my total colectomy and perm. ileo.  His opinion that there are more complications when this is done.   I spoke with the ostomy nurse I had while in the hospital yesterday and discussed this with him.  He said every surgeon has his own way of doing things but he would trust Dr. Fry with his life and that if he had to have this type of surgery, Dr. Fry would be his first choice to perform it.  However, I KNOW something is not right, as I am having pain and pressure in the anus again.  Can't wait till Tuesday.
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