Year anniversary of the total proctocolectomy

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Regular Member

Date Joined Sep 2008
Total Posts : 41
   Posted 10/15/2010 6:05 PM (GMT -6)   
Just wondering what emotions and feelings anyone out there had at the first anniversary of their ostomy surgery.  I am having mixed emotions which isnt odd Im sure but just curious, sometimes its like living alone in an awful dream and somedays I thank god Im alive and breathing :)

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 10/16/2010 6:33 PM (GMT -6)   
I was sick for so many years that my main emotion has been to be thankful to be alive and breathing.
:-) Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 10/17/2010 10:42 AM (GMT -6)   
I haven't had my one year yet, but I plan to have a party on every March 18th to celebrate being able to live again. That's my attitude.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

New Member

Date Joined Sep 2007
Total Posts : 17
   Posted 10/18/2010 4:03 PM (GMT -6)   
I went out for dinner for my 1st proctocolectomy anniversary. I celebrated the hell out of that weekend, let me tell you. It'll be three years this coming January and I have to say that while I am sorry that my crohns got so bad the surgery became necessary, I will never be sorry that I got the surgery. It's made my life easier in a lot of ways. I'm back volunteering as a Girl Guide leader and let me tell you, an ostomy bag is a lot easier to empty and deal with on camp than running to the toilet would be!

Regular Member

Date Joined Sep 2008
Total Posts : 41
   Posted 10/20/2010 5:37 PM (GMT -6)   
Thanks for sharing, I have to say that life is getting better everyday!!
Crohns since 1994, inflammatory arthritis, chronic ulcerative proctitis, endometriosis, hypothyroidism, depression
Two doses of Tysabri IV beginning of 2009, no longer on too many side effects, hospitalized for neuro problems, med helped though
Allergic to Remicade which helped me so much for about 5 years before developing allergy also allergic to Humira and Imuran
Taking Asacol and Aciphex, prempro, synthroid, xanax, Vicodin, elavil and cymbalta 
Scheduled for ileostomy Oct 2009

Regular Member

Date Joined Apr 2008
Total Posts : 139
   Posted 10/24/2010 4:29 PM (GMT -6)   
This might sound bad...but my 1st anniversary of my sub-total came and went without any fanfare because I was out living life.  I realized it a few days later and wrote a bit in my blog about all the things that I have done in the last year since surgery #1 that I couldn't have done the year before and how thankful that I am that I had the surgeries.  I think that I am more likely to celebrate the anniversary of surgery #3 because that was when the whole surgical experience was over and I was able to truly get back to living without having to plan for the next surgery.  I know that I will always remember the dates of my 3 surgeries as they are what allow me to be out living the life that I am today.  yeah

Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 on 3/23/2010
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