Update on hubby's horrible rectal spasms :(

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hvacchronie
Regular Member


Date Joined Oct 2009
Total Posts : 43
   Posted 10/17/2010 9:35 AM (GMT -6)   
Well the spasms/contractions have gotten worse and much more frequent (every 10-20min.) and he's having so mujch drainage he's having to change his pants often cry . They are bringing him down emotionally as well a physically. We go to the doc. 1st thing after dropping off our oldest son to school and sitting there till they work him in early (appt.s not sched. till 3:20). We need ideas for things we can do at home to relieve the anal pain. Does anyone know if heat helps (hot bath, warm compress...)? or cold? BTW, his current meds are Immuran, Trazadone, Ultram, pain med, Humira shots bi-weekly.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/17/2010 5:09 PM (GMT -6)   
I'm so sorry to hear this! sad When I had rectum problems, sitting in a warm bath helped some. I hope he gets to see the doctor early tomorrow. Is he willing to have his rectum removed? That would definitely take care of his problems. I know it did for me.

Please keep us posted on how things go.

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 10/17/2010 7:24 PM (GMT -6)   
oh no :(
i guess it must be a flare after all. Heat helps me. a hot hot bath.
Is he wanting to be reconnected?
Chassity
29 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy)

hvacchronie
Regular Member


Date Joined Oct 2009
Total Posts : 43
   Posted 10/21/2010 9:10 AM (GMT -6)   
Thank you for your comments! Y'all are wonderfully supportive :-) . I called first thing mon. and they told us to come on in. He didn't have to wait long at all and we saw his usual PA who is very thorough and knowledgable. His vitals were normal and his CT results from last month were normal (no abcesses or anything!). She tried to do a digital exam but Tony bout flew off the exam table it hurt so much (plus it surprised him!!)! SInce he's sooooo strictured she wanted to do blood work to check for inflammation and if that comes back positive they'll repeat the CT. They also want to do another scope but this time under general anesthesia. I'll post when we get those results. Keep your fingers crossed please wink . They DO want to remove his rectum but he's pretty terrified of complications after having this done. (he almost ALWAYS get complications!) Not to mention time off work , which he HATES. Chasblah, he was evaluated for reconnectionbout 3 yrs ago and unfortunately he's not a candidate :(

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/22/2010 3:52 AM (GMT -6)   
Thanks for the update! Having my rectum removed wasn't nearly as bad as I thought it was going to be. I had my colon removed at the same time and was only in the hospital 4 days. I was out driving and grocery shopping a week later! :-)

I felt better instantly after getting rid of those Crohn's diseased parts. I haven't had a recurrence since surgery, which was 4 years ago, and have not had to take any medicine. It took care of my pain and was SO worth it!

I just wanted to give you and him some encouragement, just in case the test results show that he should have his rectum removed.

Hugs,
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/22/2010 5:05 AM (GMT -6)   
hvacchronie~Glad he was able to get in to see the PA and they'll be taking a look at what's going on!

I can understand his concern about having his rectum removed and complications but PLEASE let him know that any issue would be better short term than continuing with a diseased rectum long term! Quality of life is a good indication when something should be done and it sounds like your hubby is pretty miserable:( I was not unlike your hubby in the complications department but would do the surgery over again in a second if I had to!!!!!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

jingy1
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/19/2010 12:24 AM (GMT -6)   
Hello all, I want to tell you the one thing that helps my spasm when they attack during the night. Squeeze your butt like what women do for kegal exercises. Keep doing this repeatubg it over and over about 2 squeezes every second. sometime even hold the squeeze and release and repeated fast squeeze. Since one Doctor told me about this, they have never again reached the peak of pain they use. The 2nd time I experienced rectal pains, I did not know what it was, thought I had to do #2 and went to the toilet in the middle of night and began pushing. OMG, i have never felt pain like that. I could not stand it sitting there that as I stood up, I fainted from the intense pain. I crashed through the sliding glass doors to my shower and thank God i landed on them in the tub. I woke up to my husband turning on the bathroom light and calling my name. I remember my legs hanging over the bath tub and in a slight daze but knew what happened. So please everyone who is affected or knows a love one. Try doing these. Practice them even before they attack. You don't even have to come out of bed when they start. Try not to panic, breath in an out and concentrate on your squeezes. The Doctor told me they come from extreme stress and I was going through a lot at that time and i know when they present themselves I am stressed out. This happens about 1 - 2 times a year, so I am glad it is not like before. I hope I could help. Let me know if this helped anyone when they get it. God bless!
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