So Sick Really Need to Vent!

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andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/18/2010 7:56 AM (GMT -6)   
Hey Everyone.
Well its 11.45 here in Australia and even after taking 2 sleeping pills I can't sleep. As a lot of you are aware I recently had adhesion surgery (less than 2 weeks ago) and when I was in hospital straight after surgery I had a sore throat which I didn't really think much of since they had tubes down my throat and its normal to be sore there. Anyway I developed a bad cough and really bad headaches so since Im on both methotrexate and humira for RA and to keep the crohns/colitis at bay, and I am also helping my mum look after my father who has pancreatic cancer and they just stopped his chemo since its spread to his liver so I need to get on top of this real fast. The doc prescribed me some antibiotics but after 4 days I was getting worse, burning up with temps as high as 39.1 tonight, I went back to my doc today and she gave me stronger antibiotics but reminded me that since Im on the meth and humira It probably would take longer for me to get well. The coughing tonight is hurting my stomach something shocking so Im about to take an oxynorm pill in the hope toease that pain . I am in tears, I just don't know how much longer I can deal with this, plus I live alone so theres noone here to help me in any way. Sorry Iknow this is sounding like a pity party and I guess it is. Why can't things be eassier for once in my life? My marriage broke down 7 years ago due to constant illness, I have had 4 surgeries in a space of 18 months 2 of which were major. Someone put me out of my misery. The only thing that keep s megoing is my family and my beautiful grandkids. Thanks for listening, hope u are all well,
Doreen

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/18/2010 7:27 PM (GMT -6)   
Doreen  Gosh girl I feel your pain.  Before I had my surgery my dad was ill with Lukemia and passed last October, got my surgery this Feb.  Its all overwhelming, but please take care of you too or your no good to your father.  I am so sorry to hear about his news, the pancreas is not one of the best places to get this.
 
I don't know what his outcome is going to be or what they have said.  But if its something that they cannot fix or cure...this seems like a stupid question but do they have Hospice over their or just a hospital option.  I thank god every day that we have hospice in the USA, because in the hospital they will not medicate your loved one so they can go in peace.  For me I took care of my father at his home and was able to keep him from suffering and not going through turminal aggitation over and over.  Once he went into terminal aggitation I had to just keep him medicated hr by hr so he passed without struggeling.  I thank God every day for that.  Just something I thought I would just share with you.  If it comes to that I hope that you have the option in Austraila...
 
Much prayers and love
 
Leslie

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 10/20/2010 3:42 AM (GMT -6)   
Yes I also feel for you and wish you a speedy recovery Doreen - I did not have the same isues but i had a chronic cough after my surgery and it killed me.

- I agree with Leslie please look after yourself also - your mum is there for your dad but who is there for you? Be good to yourself and let us know you are feeling better... dont give up
Karen 48 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR surgery for mucosal prolapse/Obstruction/diagnosed slow transit constipation
2007: Sigmoid resection-partial volvulus resulting in worsening of colonic inertia (cleared obstruction though)
March 2009: Loop Ileostomy
23 Sept 2010: Ileostomy reversal

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/21/2010 6:30 AM (GMT -6)   
Thanks Leslie and Karen for you kind words, its people like u that keep me going too. Thanks so much for being there to listen to me at a time where I felt so very alone. I'm still struggling with a lot of things but I have to take some baby steps at the moment and tackle one thing after the other and hopefully get well and be able to stay that way for a long long time for a change :-). Your right my mum is there for my dad too but she is also very fragile at the moment and I worry so much about how this is all affecting her, between both my bad health and dads she is having trouble holding herself up too and it breaks my heart to see her in tears more days than not lately. I keep telling them I will be fine but they say I look terrible and they are worried they may lose me too. I am too tough to be going anywhere yet. The battles are hard thats for sure, but its one we must keep fighting, Take care and thanks again for taking the time to show you care.
Doreen xo

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/21/2010 1:57 PM (GMT -6)   
Doreen 
 
Hun on here your never alone.  You can ask anything of any of us and we will be here for you.  I bet your alot tougher and stronger than you know.  I think all of us on here that have gong through suffering, has made us fragile, but eventually we become stronger with sure will and welth of information we gain from this forum.
 
Life has handed us so much...as of yesterday I received a email from my son's new wife.  Telling me that I am no longer his mother and my grandbaby is no longer my grandbaby and that they are going to get a restraing order against me ...right.  Because they now live back in my town.  I have done nothing to deserve that, had me pretty up-set yesterday.
 
So today I am going to find out if I can if I can some how be entitled to visitation to my grandchild.  Zachary is my step-son, and have raised him for 24 years, but his father and I divorced years ago in 97...so calling a lawyer to see if I have any rights at all..
 
So take good care, keep positive, I know it's hard...
 
Thinking of you
Leslie

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/21/2010 8:04 PM (GMT -6)   
Oh Leslie, I'm sorry to hear your going through such a tough time as well, that would be heart breaking for you. If you need to talk ever don't hesitate to email me even. I wish there was more I could do to help you out. Take care and keep you chin up, I will send my best wishes and hugs your way.
((((((((((((HUGS)))))))))))))
Doreen

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/21/2010 11:02 PM (GMT -6)   
Doreen
 
Oh thank you so much.  Had a great day today though.  My father passed last Oct. and his brother came up from Ca today and we went to dinner at a casino and played for a hr...Lucky for me I won 125...thank God cuz my mom gave me 20 to play with cuz I am broke so paid her back and now I have some money till the end of the month.  Living on disability...sucks...for me...  cant wait till I am well enough to look for a job in this great economy..
 
Hope your well...
 
Huggggssss back to you
 
Love Leslie nono
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