Haven't been on much lately. I finish my second round of biofeedback and now I'm eligible for surgery since my numbers dropped some and I can pass stool without an enema. I get my surgery date either today or tomorrow. I'm getting a subtotal colectomy so I won't have to wear a pouch.
My dad and stepmom are adamently against it and my mom is freaked, but knows I've been suffering long enough and supports my decision.
It sucks because it is a huge thing and it really is affecting me emotionally and yet no one realizes how I feel about it. Yes its my choice and I won't die without the surgery, but its still a big deal.
So other than that I've been thinking about creating a non-profit for either intestinal or gastro disorders. There are lots for colon cancer and specific disorders like Crohn's and UC, but not a general disorder. I certainly haven't seen a single one for colonic inertia. Any thoughts?
Appendicitis, Terminal Ileitis, Crohn's, Celiac Disease, IBS-C, Chronic Constipation, Colonic Inertia, Rectocele, Anismus
Tests: 2 Colonoscopies, 2 CT scans, Sitzmark Test, Anorectal Manometry, Food Allergies, Thyroidism, Pudental Nerve Study, Defacogram, SMART Pill, Electromyogram, Celiac Panel, Small Bowel Study, Gastric Emptying Study - Solids
Pentasa, exercise, diet changes, pro-biotics, vitamins, laxatives, stool softeners, Miralax, Amitiza, anti-depressants , fiber supplements, water enemas, Fleet enemas, suppositories, mineral oil, phenergan, Zofran