Skin problems under wafer....as always. Please help!

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80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 10/18/2010 5:09 PM (GMT -6)   
Hi everyone,
I have super sensitive skin and have not been able to tolerate any adhesives, no matter the brand.  Finally I found a wafer without tape from Hollister that is made of pectin that, according to my ostomy nurse, won't bother me unless I'm allergic to pectin, which I'm not.  It's really the only thing that works for me....until recently. I started using Eakin seals and Adapt Barrier rings (same thing) under my wafer, and I've been doing that without problem for about 6 weeks. Now all of a sudden I have a really itchy rash! I've always read that Eakin seals have NEVER had one instance of people developing a rash from them, and I honestly have no other options. I've tried EVERYTHING. I'm mildly freaking out. Does anyone have any suggestions?
 
Also, could this be a yeast infection or something unrelated to the wafer? I am so sick of this CRAP! I don't mind having an ostomy, I really don't...as long as it would just function correctly and let me wear a freaking pouch!
 
What does a yeast infection look like? Does it itch? I'm so frustrated. :(
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/18/2010 5:46 PM (GMT -6)   
Yes, it itches but I think it also oozes.

Have you tried the wafer without a seal or paste? I've actually done it a few times but my stoma area is funky and needs a little 'lift' so I've stayed with the Eakin. I don't know how often you change, but the worst you might have to do is change a little more often.

Do you know which seal is bothering you? They are different and it's possible that one will work for you...were you alternating them? Does paste bother you?

I don't know what it is but I've tried new products and they're fine for a week or so but then start acting up sad

Hang in there...I don't have the allergy problem but my peaks and valleys were challenging in the beginning and I felt like I wasn't getting anywhereskull but it does all come together!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/18/2010 7:17 PM (GMT -6)   
Stephanie,
I'm sorry you're having skin problems, but hopefully, we can help find the right solution for you.

There are two products that really help my skin: Calmoseptine Ointment and Nystatin Powder. The Calmoseptine goes right around the stoma to protect the skin, and the Nystatin helps treat fungal infections. Ask your doctor to call them into the pharmacy and give them a try. They have worked wonders for me, and I hope they help you, too.

Hang in there, and keep us posted on how you're doing. :-)

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 10/19/2010 5:31 AM (GMT -6)   
Cecelia, which Dr would you call for that? General practioner? Gastro? Surgeon?

I can't tell if it's the seal or the actual wafer itself. When I change tomorrow I will look closely and try to figure it out. Then I will try paste just for this time. That was causing leaks before. I change about every 2 days.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/19/2010 11:42 AM (GMT -6)   
I called my surgeon's office and asked if someone there could call the scripts in to the pharmacy, which they did. I checked online, and Nystatin treats yeast infections, too. The Calmoseptine protects your skin around the stoma from getting poo on it. :-)

Good luck!

Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Gilda
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 10/22/2010 12:05 AM (GMT -6)   
Cece, could you please let me know if you still have problems maintaining your weight? I need to decide very soon if I am goiing to have an ilestomy. Currently I have a SubTotal Colectomy (hooked up small intestine to rectum). I have had this "arrangement for 1.5 yrs but it is not working for me . . . .. diarrhea 15-20 times/day . . . very painful, lots of bleeding. My doctors are thinking maybe an Ileostomy would be a better alternative. I have lost over 30 pounds since the subtotal colectomy. i am wondering if i would be likely to be able to gain some weight if I had an Ileostomy?

Please post soon!

Thanks,
Gilda

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/22/2010 4:04 AM (GMT -6)   
Gilda,
I'm so sorry to hear that you're having to go to the bathroom that much! My heart goes out to you, because that was what I went through before my ileostomy when I was sick with Crohn's. I was very thin and malnourished. sad

Now, I have no problem gaining weight with my ileostomy. In fact, I have to eat healthy and exercise in order to keep the weight off! Plus, my recent blood work showed that I am completely healthy.

Please keep us posted on what you decide to do.

Hugs,
Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/22/2010 4:59 AM (GMT -6)   
Gilda~I can understand what you are going through, too sad

I just wanted to say that I am similar to Cecilia in that I have to exercise and eat healthy to keep my weight where it should be. I thought keeping weight off with an ileo would be a breeze, but once our bodies start feeling better and absorbing nutrients, the weight comes back!

There are exceptions to the rule but the majority is that we gain weight since we can actually eat!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

beachtrip1
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 10/22/2010 10:01 AM (GMT -6)   
I had similar issues... I was allergic to the pastes and adhesives.  It caused terrible itching and redness... even to the point that I was ready to take the bag off and rig up some other way to catch the output.  I went to my ostomy nurse and she gave me the BEST stuff... it's called Stomahesive Powder.  When you are changing the bag, you sprinkle it all around the area where the bag attaches, let it sit for a moment and then simply dab it off with one of the sticky, protective barrier wipes and replace the bag as usual.  Worked wonders for me!!  Hope you find some relief fast!

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 10/24/2010 4:14 PM (GMT -6)   
Are you having small leaks before this occurred that you noticed when you changed?  Which version of the Hollister wafer are you using?  As I recall they had 2 variations without tape and one was better than the other if you have skin allergies (at least that's what my stoma nurse told me).  I had this happen to me and so I would use the Stomahesive powder on the affected areas and brush off the excess with my fingers.  No pastes, wipes or sprays for me as they made it worse.  Mine was not a fungal infection (but it did itch) so the Stomahesive powder would clear it up after a couple of changes where I didn't push and try to get lots of extra days out of my appliance.
 
I also noticed that this would happen if I used Hy-Tape to get a few extra days.  I'm allergic to something in the Hy-Tape adhesive.  I always used the Adapt rings - never tried the Eakins, but I didn't use a whole one.  What does the rash look and smell like?  I think that may help determine if it's a fungal infection or just a skin issue.
 
OOOH!!  I just remembered the other thing(s) that caused this for me.  If I didn't use adhesive remover to take off my wafer I would have skin issues - I might have been removing some of my skin as I pulled off the wafer.  Also - if I didn't shave the area where my wafer went I would have problems (not as bad once I started using adhesive remover - but it still happened if I didn't shave).  I also always washed the area with Hibiclens soap on change day after I was done washing and shaving so that any residual films from the rest of my shower products were removed and I had clean skin.  Once I figured all of these things out things went smoothly with my end ileo.  I did try a Convatec wafer which was great for my skin, but was so stiff it was a pain to deal with so I stuck with the Hollister.
 
Is it possible that you are changing so often that you are irritating your skin or are you changing because you start to leak?

Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 on 3/23/2010

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 10/24/2010 9:10 PM (GMT -6)   
NASCARon
Send that extra weight over to me. I am trying to get to 135 lbs. Before ileostomy 3 years ago I was about 145. I am on the seefood diet and can't gain any. Guess I should feel fortunate.

Dan

alouise
New Member


Date Joined Oct 2010
Total Posts : 1
   Posted 10/27/2010 9:28 AM (GMT -6)   
  • I recently had skin irritation, I went to have checked and ostomy nurse used stoma powder and applied a skin barrier before applying the wafer. It stayed in place for 4 days so thought it was time to change, I discovered the skin barrier did work because my red irritation was healed just one spot still visible so I applied the stoma powder again. I am new at this, still a little nervous but doing my best to get aquainted with my temporary lifestyle change. This website has really ben a blessing for me. Good Luck!!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 10/27/2010 9:36 AM (GMT -6)   
     I have some redness and itching too.  My surgeon gave me a script for Nystop.  I believe it is the same thing as Nystatin for yeast.  I sprinkle it on, wait a few minutes and then wipe off with a tissue.  Then, I use Reliamed Protective Barrier Wipe.  It burns a bit but protects the skin from adhesives.  Make sure your skin is completely dry before applying the wafer.  I use one piece Sensura bags by Coloplast.  Never had a problem with them like I had with Hollister.  The Hollister bags broke twice on me!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 10/27/2010 6:55 PM (GMT -6)   
Hi everyone,
Thank you so much for your input.
 
I am currently usuing a Hollister 2 piece non adhesive convex wafer. I didn't realize they had two different kinds of non-adhesives. Maybe I will call my Hollister rep, because I have never noticed that in the supply books. The Hytape is really awful for me too...I'm allergic to EVERYTHING!! :(
 
BEcause of all of your advice, I called my surgeon and ostomy nurse and got a prescrip for Nystatin (Nystop).  They said it sounded like a fungal infection (is that the same as a yeast infection?). I've been putting the powder on with a Smith and Nephew no-sting wipe afterwards, and wearing the wafer about two days. I still had itching, so I called them back. They put me on Diflucan (oral anti-fungal, I guess) as well as the powder, for two days.  I will change tomorrow and see how it is.
 
I am sooooo hopeful for something to help. I just want to know that this isn't going to be a permanent problem, since I kind of don't have any other options.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/27/2010 7:43 PM (GMT -6)   
I hope the Diflucan and Nystatin help clear up your skin problem.

My brother-in-law works for Smith & Nephew, so he hooks me up with their products. The No-Sting wipes caused my wafer to peel off, so I stopped using them. All I use are the Remove wipes to remove the wafer on changing days.

Maybe just try the powder without the No-Sting to see if that helps give you more wear time.

Keep us posted!

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

David Martin
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 10/27/2010 8:09 PM (GMT -6)   
ConvaTec DuoDerm.
Adam, 16. Birthday Sept. 30.

Diagnosed with Ulcerative Colitis a little over four years ago. I no longer have UC. I had surgery may 25. Final surgery is to be around the day before or after thanksgiving.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 10/28/2010 5:29 PM (GMT -6)   
Ok, Adam, you're going to have to give me more than that. What IS DuoDerm, and how does it work?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 10/28/2010 5:55 PM (GMT -6)   
adam made a post about duoderm called "I highly recommend it * if needed"

but basically its a barrier that you put under your wafer to help skin heal and kept it away from the adhesives. it comes in different thicknesses and is used to help heal all kinds of wounds.

here's the reference page on ConvaTec DuoDerm
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-Now IBD is indeterminate tests will be done after healing if still UC J-pouch surgery, if Chron's take down of colostomy

crank
New Member


Date Joined Nov 2010
Total Posts : 9
   Posted 11/10/2010 11:40 PM (GMT -6)   
I had the Itching and ozing several years back. It was hard to keep the wafer on. I got some Kennalog spray from the Doc and it just killed the yeast infection an dthen used the Kayara powder to stop the ozing.

Worked perfect. Now every other change I give it a shot of the Kennalog Spray.

No More Problems.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 11/11/2010 6:38 AM (GMT -6)   
So do you think i could just ask the Dr for a prescrip for Kennalog spray?

I've been using powders and it is doing NOTHING except making my wafer annoying. I went to see an ostomy nurse yesterday and she gave me a few options but seriously, I'm MISERABLE!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/11/2010 9:14 AM (GMT -6)   
80sChick~I would!

Have you done a skin test of the Duoderm? You might even be able to pick up one at a pharmacy that carries wound products...It comes in different thicknesses and might work to protect your skin from the wafer...as long it isn't a bother! It is used over damaged skin to help it heal...I used it with a wound vac and it did wonders:)
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

crank
New Member


Date Joined Nov 2010
Total Posts : 9
   Posted 11/11/2010 11:59 PM (GMT -6)   
80sChick,

I just asked the doctor for Kenalog Spray and he said what for and I pointed at my stoma and he said ok.

I told my urologist about it and he said that it kills yeast infections faster than anything.

I have not had a problem since.

crank

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 11/12/2010 3:50 AM (GMT -6)   
I was prescribed the Kennalog spray too. I usually use it each time but I didn't last time cause it's expensive. Even for a little can with insurance it's $65 out of pocket. I didn't use it last time and now I have rashes all over. They just prescribed me the nystatin so we will see how that works when I change the bag.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/12/2010 10:07 AM (GMT -6)   
     Did your doctors tell you all to try to leave the wafer on for five days?  I was changing every other day but my surgeon said the skin becomes more irritant the more often you change.  I couldn't wait the five days..ugh...I use the one piece Coloplast.  Maybe it is my imagination, but I get the feeling it starts to smell...lol.  I ate fish yesterday and when I emptied my bag shocked    PU!  I went to my cabinet where I keep my wintergreen mints and they were gone smhair .   Here, my daughter ate them...darn it all!  They make my output smell minty tongue .

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/12/2010 7:44 PM (GMT -6)   
Christine,
Do you put the mints in your pouch or in your mouth to make the output smell minty? A capful of mouthwash in the pouch makes it smell minty, too. :-)
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.
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