New member - Upcoming reversal

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New Member

Date Joined Oct 2010
Total Posts : 6
   Posted 10/21/2010 11:15 AM (GMT -6)   
Greetings!  This is my first post.  My colon was removed two years ago and I have an ileostomy now.  Reversal is scheduled for next week.  Living in a relatively small town is great but sometimes answers are hard to find.  I called the medical center where I'll be going and expressed my concerns.  A doctor called me back and carefully explained the reversal procedure, risks, etc.  That was dandy and I appreciated it, as I told him.  However, the procedure dosen't concern me at all.  I am concerned about the days, weeks and months after that.  Then I found this site.  Thank you all very much!!   I am not sure how I will fare, but reading four years worth of messages has been very helpful.  In returrn, I promise to report back and contribute... 

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 10/21/2010 9:21 PM (GMT -6)   
Hey calflag,
I have a permanent ileostomy no reversal for me so I can't help in the advice on recovery after that kind of surgery, but I'm pretty sure someone will be along soon to give you the advice on that. I just wanted to welcome you to the site and glad you found us. It is a very informative forum and wonderful support from some lovely people. Hope it all goes well for you and wishing u a very speedy recovery. Keep us updated on your progress, Take care.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 10/22/2010 5:14 AM (GMT -6)   
Just wanted to welcome you to the forum! I did have a reversal many years ago but I still had my colon at the time so it's really not the same as your situation...but it was the easiest surgical procedure...the days after were trial and error! Keep a food log and get instructions for Metamucil and Imodium from your doc. You may want to get some Calmoseptine Lotion or I think it's Monkey Butt for soreness...someone will confirm that one for me!!

Good Luck and keep us posted!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

New Member

Date Joined Oct 2010
Total Posts : 6
   Posted 10/22/2010 10:12 AM (GMT -6)   
Thanks for the welcome Andorable and Ohio76. I have read all the posts now and know to expect the unexpected. I will definitely keep a food log. I am headed to the drug store to get some supplies. I can't wait to ask for "Monkey Butt." I am going to the Mayo Clinic in Arizona and would really appreciate hearing from anyone with experience there. I have had a preliminary procedure done there and I found the
Doctors and Nurses to be top notch. It's just hard to corner anyone there and ask them to sit down with me for an hour or so and explain my recovery, so thanks again to all of you. I will report back and contribute often to help support this forum.

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 10/22/2010 3:31 PM (GMT -6)   
Hi, I had my reversal done in April but, still have half of my colon left The day after the operation I was up walking around had my make up on and felt great! although, I was on the toilet every 5 minutes of the day and night, in the end I asked for those incontinence knickers to wear. once you start to eat solid food it does ease up, after about 4 weeks I startred to take my loperimide again but, now i take questran sachets which are great! wishing you all the very best with the reversal you will be fine. Bev x
Diagnosed with crohns at 13, right Hemicolectomy in 93, remmision till sept 08, small bowel resections & fistula excised, along with temp stoma in 09 stoma reversed 2010
Meds: 8 week course of pred 20mg, Azathioprine 50mg, starting Humira 20/10/10 Lomotil, citalopram 20mg, questran & VSL#3.

“I may not be where I need to be but,
I thank God I’m not where I use to be “

Regular Member

Date Joined Oct 2007
Total Posts : 318
   Posted 10/22/2010 6:36 PM (GMT -6)   
hello and welcome!

I just wanted to let you know that (united ostomy associations of America) has a discussion board as well and they have a whole section devoted to takedowns and reversals that would have a wealth of info for you as well. I don't have any personal advice as I just had my colostomy created, but good luck with your surgery and I hope you have a speedy recovery!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-Now IBD is indeterminate tests will be done after healing if still UC J-pouch surgery, if Chron's take down of colostomy

New Member

Date Joined Oct 2010
Total Posts : 1
   Posted 10/25/2010 8:59 AM (GMT -6)   
Hey all, I am new to this forum, I had an interteception and now an ileostomy. I am only 14, so its been tough but the worst is over. I go for my reversal this weekend and would just like to thank you all for posting, it really makes me feel much better about my upcoming surgery, im sure it will all go well.

Thank you all

Post Edited (Justin142) : 10/26/2010 10:33:48 AM (GMT-6)

Regular Member

Date Joined May 2009
Total Posts : 92
   Posted 10/26/2010 11:03 AM (GMT -6)   
I had my jpouch surgery last Wednesday.  Don't worry about the surgery, it's a breeze.  You wake up in very little pain that is easily managed with pain meds.  Your bowels won't wake up for a good 24 hours so enjoy the drugs during that time and walk around as much as possible.  When your bowels do wake up, start applying calmoseptine, a & d, desitin, etc right after each movement.  If you don't, you will develop a bad case of butt burn.  Speaking from experience.  I waited too long and it felt like razor blades coming out for 48 hours and I'm still very sore.  When you get home, get ready for constant urges to go to the bathroom and 10-15 trips a day.  Your rectum will get very sore from being out of use and from the acidic stool coming through.  You may gas based on what you eat.  Take it very very slow with foods.  I plan on staying low residue for at least 3 weeks. 
No one really told me how rough it was going to be when you get home from takedown.  I thought it would be manageable but its tough.  Just know that each day gets better and the end result is what you are after.  Good luck..

Regular Member

Date Joined May 2009
Total Posts : 92
   Posted 10/26/2010 11:04 AM (GMT -6)   
Oh, and is a good site for information..

New Member

Date Joined Oct 2010
Total Posts : 6
   Posted 11/13/2010 12:50 PM (GMT -6)   
Now for Something Completely Different!
My first post was last month prior to my ileostomy reversal.  I am now home with a rather unique situation.  All this started Christmas day, 2008 when my colon suddenly mugged me.  I was rushed into emergency surgery where my colon, gall bladder and appendix were removed (I think they were having a 3 for 1 sale).  Another surgery was performed two weeks later.  I spent six weeks in the hospital and six more weeks in a skilled nursing facility.  I returned for two followup surgeries for abscesses.  Last month I went to the hospital for my much anticipated reversal surgery.
The surgery went well and it was thought I would be in the hospital for three to five days.  However, my stay was 13 days.  The "different" part for me was my system started back up 36 hours after the surgery then shut down again.  I had progressed to solid food and my system did not seem to like that.  I had a couple of rough days, but then my system started up again (a little).  Again, I was given clears and then progressed to solids again (much more carefully).  Guess what?  Yep, shut down.  I returned to NPO (nothing by mouth) and waited.  Finally, a little gas happened and clears were added followed by small amounts of soft foods.  Monday night I had a small movement and again about 4am Tuesday.  Tuesday morning I was released and went home.  I have been home for four days and have two to four little movements a day usually with some gas.  My surgeon told me she suspected my problem to be the large amounts of scar tissue left after my emergency surgeries.  I feel I am in the eye of the hurricane and when my system gets fired up I will go from saying "Go, go" to "Whoa, whoa!"  I'll keep you posted.  I really appreciate this site.  Also, I haven't read about anyone else having this problem (almost constipation) and would welcome any feedback.
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