What to expect after J-pouch surgery

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New Member

Date Joined Jul 2007
Total Posts : 14
   Posted 10/23/2010 5:00 PM (GMT -6)   
My boyfriend is getting a J-pouch in a couple of weeks. I always stay with him while he is in the hospital.
I just want to know in detail what he will be like right after this surgery while in the hospital. I know you can't control bowel movements afterwards. So should I stay in the room with him or will he constantly be going to the bathroom on himself?
He said he will have to wear a diaper for a while until he can control it. I just feel like I'll be uncomfortable seeing him like that and nurses will probably be cleaning him up and that will really bother me to see.
I just want to know what to expect so I'll be prepared.

Veteran Member

Date Joined Dec 2009
Total Posts : 2396
   Posted 10/24/2010 3:22 AM (GMT -6)   
My daughter has UC and we are considering surgery. I've been reading jpouch.org, jpouch.net, ucvlog and a few other sites to get information. Maybe these would be helpful.

Regular Member

Date Joined Jun 2009
Total Posts : 30
   Posted 10/24/2010 4:30 AM (GMT -6)   
Who told you he won't be able to control his bowel movements? One thing almost everybody says after the surgery is that they are so surprised at just how much control they have. His frequency will likely be high and he may have to visit the toilet a lot but it is unlike when he had UC where he had to get to the toilet this very second.
There is a possibility of some leakage while asleep, but being careful with diet, fully emptying before bed and regular pelvic floor exercise can help limit and hopefully prevent this. Medications like loperamide can help too as can bulk formers like Metamucil.
When I had mine done, over 9 years ago now, I was going to the toilet 10-12 times a day for the first few days, this dropped back to 8-10 after a week or so and was at 6-8 after about a month and continued improving for the first 12 months.

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