Showering with 2 piece system

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Kittiecat
New Member


Date Joined Oct 2005
Total Posts : 18
   Posted 10/25/2010 4:50 PM (GMT -6)   
I was wondering if it is ok to remove the pouch of a two piece system for showering and just have the wafer on.  It would be nice not to have that darn bag dangling while I shower.
Diagnosed with Crohns in 2006 at 43, sudden onset.
 
09/2009 Colonoscopy showed inflammation in the terminal ileum, rectum and all over entire colon.
 
Meds:  6-MP 100mg, Prednisone 15mg with 5mg taper per week, Lialda 4.8g, B-12 tablets, Folic Acid, Calcium +D, Humira, Prilosec
Sulfasalazine, Pentsa, Colazol, EntocortRemicade, Cipro, Flagyl
 
Hospitalizations:  Jan 2010 for uncontrolled flare.
 
 

katiesmommy1
Regular Member


Date Joined Aug 2009
Total Posts : 94
   Posted 10/25/2010 6:33 PM (GMT -6)   
My daughter wears a two piece and I would think if you took the pouch off and just showered with the wafer it would weaken the seal. Since it would be getting wet and soapy all over the wafer.
Not sure since I never actually tried it though.
just my opinion.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 10/27/2010 8:29 PM (GMT -6)   
Kittiecat
I wear a one piece. Very often I fill the bag with warm water to rinse it out. I fill it entirely, squeezing out all the air. This has not caused me any problems. Not the same as you are proposing, but similar.

Dan

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 10/27/2010 10:12 PM (GMT -6)   
I've been wondering this myself. I know water is no more harmful that poo sitting in the bag all day but the soap makes me question it.

I know someone here (I believe it's summerstorm) tapes their bag up when they shower because of the dangling. I don't know what kind of tape though because I was wondering that since I know paper tape doesn't hold up in the shower.
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-Now IBD is indeterminate tests will be done after healing if still UC J-pouch surgery, if Chron's take down of colostomy

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 11/10/2010 11:25 PM (GMT -6)   
I use Glad Press 'n Seal -- you can find it in the market, in the section with foil and plastic wrap. I just tear off a big rectangle, stick it over my pouch overlapping onto my skin, and it keeps 90% of the water out. I often just need to pat the edges of the pouch dry after the shower, but it feels more comfortable to me not to have it dangling.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch

webby90
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 11/11/2010 2:57 PM (GMT -6)   
i shower without my pouch on every morning that im only changing the pouch. ( my two piece system is a click system though not an adhesive type) and i havnt notice it weekening the wafer.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/11/2010 9:31 PM (GMT -6)   
I wear a two piece appliance and have showered many times without the pouch, and it has not compromised the wafer. Like webby, I usually do it when I change the pouch halfway through the week, but don't need to change the wafer yet.
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

sosueme
Regular Member


Date Joined Mar 2007
Total Posts : 53
   Posted 11/11/2010 11:51 PM (GMT -6)   
I wear a two piece system and I always shower with my pouch off,hate having to dry it. Never usually have any problems with it.
Sue

JoAnnp
New Member


Date Joined Nov 2010
Total Posts : 4
   Posted 11/12/2010 10:24 AM (GMT -6)   
I showered with my 2 piece system all the time, the water did not cause any problems. My Dr told me to shower without it, but I just didn't want to have poop running down my legs.

JoAnn

Shiney
Regular Member


Date Joined Nov 2010
Total Posts : 20
   Posted 11/16/2010 1:15 PM (GMT -6)   
I wear a two piece drainable system and when I shower, I remove the drainable bag and replace it with a close end "mini bag". Then, I just rinse it out to be used again next shower and replace with my drainable bag.
I get many days use out of the mini bags since I'm only wearing them in the shower. I also use them for intimacy.
Peace!
Crohn's since 1990. Bowel resection few years later then sub total colectomy / ileostomy in 1996. Ileostomy reversed in 2000. I did real well on Remicade when I flared up a couple years after the reversal. After Remicade failed me, I had ileostomy surgery AGAIN Feb 2008. Currently working towards remission once again. One day at a time!

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 469
   Posted 11/16/2010 3:17 PM (GMT -6)   
I wear a two piece. I pull the bag off and leave the wafer on when I shower. I usually use Sure Seals over the wafer but they aren't necessary. The water actually makes the wafer adhesive more tacky in my opinion. Take the bag off, it's much more convenient!
Laurenne, 26 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Was in flare from 2006-2010 with almost no relief from any meds I tried.
On: Cimzia, Zoloft, Abilify, 6MP
3-9-10: Total protectomy and Sigmoid colostomy installed. Haven't spent more than 2 minutes on the toilet since- it's fantastic!

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 11/16/2010 6:12 PM (GMT -6)   
not creative- I just did a quick google search of the Sure Seals and they sound interesting. Do they just fit over the part of the wafer where the bag attaches to keep water from getting to your stoma, or do they stretch completely over the wafer and attach directly to your skin to keep the entire appliance dry?
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