i think i ruined my stoma

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2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 10/27/2010 12:40 PM (GMT -6)   
hi everyone,
 
i think i ruined my stoma. what happened was, last saturday i changed my wafer. after i put the new wafer on, i wanted to tighten the adapt ring, but i couldn't push on it w/o putting the bag on first, cuz the pushing caused stools to come out, so i put the bag on, so i can push on the ring to tighten it w/o causing a mess. when i pushed with my finger, i pushed on the stoma itself instead of against it. i felt pain and thought i may have pushed the stoma down into the abdomen. i couldn't really tell if my fear is true and thought next time i change i hope to see that the stoma is ok.
 
anyways, today i had a horrible leak, i took off the wafer and saw that my stoma has significantly retracted, but only the lower part (i have a loop ileostomy), just the place where i pushed with my finger. the upper part looks good.
 
i know they can do surgery to fix a retracted stoma, and what i wanted to ask was does anyone know if this is a simple operation or a complicated one??? also, i don't know if it's a silly question, but does anyone know whether it's possible the stoma can stick out again on it's own?? i mean go back to the way it was??
 
i'm so frustrated and worried that i damaged my stoma and now may need more surgery to fix it cry
 
thanks for any thoughts/advice.

pelztier86
Regular Member


Date Joined Apr 2009
Total Posts : 401
   Posted 10/27/2010 4:59 PM (GMT -6)   
are you really sure that you will need surgery to fix it? I am not sure about this...anyway, if you should have I would aks for an end ileostomy/removal of the loop. It is my understanding that you don't plan to get ever reconnected again and I would not recommend this to you, too. Thus, it would be better to get rid off the loop since there is always the chance that this loop can cause problems in the long-term. It is not designed for long-term use. Bacteria can easily settle down in this blind loop and cause problems etc etc.

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 10/27/2010 5:55 PM (GMT -6)   
Hodaya, I am sure your stoma is okay. My stoma changes size and shape alot. When I was wearing a convex barrier, my stoma would stick out over an inch. YIKES...then, when I switched back to a flat barrier, it sticks out anywhere from 1/2 to 1 inch. Remember, my doctor put his finger inside my stoma to feel my hernia and he was not gentle.....and my stoma is okay.

It should return to its normal size.....

Let me know.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy
Take-Down-TBA
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/27/2010 8:57 PM (GMT -6)   
Hodaya,

I hope your stoma is okay! I think you should let your surgeon see it to let you know if he thinks it will come back out on its own or if it needs to be fixed surgically. Please let us know how it goes!

Hugs and prayers,
Cece

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 10/27/2010 10:42 PM (GMT -6)   
first, you should notneed surgery.
 
second, surgery for a retracted stoma is NOT a simple procedure. Its just as invasive as the ostomy surgery (i asked my colo rectal surgeon this bc I have a retracted stoma.)

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/28/2010 2:02 AM (GMT -6)   
I agree with Cece you should perhaps contact your surgeon and let him take a look at it, I think it should be ok without surgery but best to be sure. Take care and let us know how u go
Doreen :-)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/28/2010 5:55 AM (GMT -6)   
I don't think you ruined it...but call your doctor and have them take a look at it...they have a lot of 'tricks' that we don't know about!

Keep us posted:)
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/28/2010 2:00 PM (GMT -6)   
thank you all so much for your help and support! i havn't called my dr yet. i put on a new appliance yesterday and so far it looks good. i'm thinking of changing the wafer again on saturday. i hope that by then i see the stoma is back to it's normal size, but if it's still retracted, then i'll call my dr. i hope i don't have too.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/30/2010 2:39 PM (GMT -6)   
hi everyone,
 
i just changed my wafer and am so very happy to report my stoma is back to it's normal size!!!!
 
i'm SO happy and RELIEVED!! turn
 
thanks so much everyone for your help and advice!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/31/2010 5:51 AM (GMT -6)   
Glad to hear! Thanks for keeping us posted.

Cece

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/31/2010 1:06 PM (GMT -6)   
Hodaya, so glad that everything worked out for you.  I know you must have been scared.  I know that since my surgery and I don't have a appliance, I am kind of paranoid about what I eat to everything I feel in my intestines...I have had my ups and downs and this week my guts have been in a up-roar.  From my moms home made chicken soup, I think it was a little bit tanted and gave me loads of problems from tues, till today I am starting to feel a bit better.
 
Everyone have a Happy Halloween and great digestive health...
 
Leslie.................;;;;  SPOOKY''''';;;;;;

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/31/2010 2:28 PM (GMT -6)   
thank you Cece and Leslie.

Leslie, i'm glad you're feeling better today.. stay healthy! ~<:o) looks like a clown, doesnt it?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/31/2010 8:55 PM (GMT -6)   
Hodaya  Yes it does.  Yes I think things are finally trying to settle down.  Ate a little tonight so we shall see..Happy Halloween..do they have it over in your neck of the woods..LOL
 
Leslie

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 11/1/2010 9:09 AM (GMT -6)   
we dont have halloween, but we have "purim" - it's a holiday in which we also wear costums. purim is in around March tho.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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