Ostomy for Anismus?! Please Help! :)

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Life Happens
Regular Member


Date Joined Oct 2010
Total Posts : 28
   Posted 10/27/2010 10:33 PM (GMT -6)   
I've been suffering with this for a while, as well as ibs, and I am in constant pain.

Constant cramp in my lower left colon not relieved by a movement as well the outlet problem.

I was hoping to speak to a surgeon and opt for a ostomy, hoping to get my life back. I'm only 20.

I just had a few questions...

1. Can I opt to skip Biofeedback and go for the surgery right away? I've been told it has low success rates.
3. Can the surgeon deny my wishes?
4. If I got an ostomy, would my colon be removed? Im in constant lower left pain which I believe caused my problems in the first place. It was my beginning symptom. Im hoping they will.

I just really want life back and don't want to be in all of this pain anymore.

I'm off to crawl into bed now and try and fall asleep lol. Thanks for listening and any advice.

-Andrew

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/28/2010 5:50 AM (GMT -6)   
I am sorry I don't have answers for you but you may want to post your question directly on the 'Total Colectomy' thread...they will have suggestions for you!

I hope you find relief soon.
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Life Happens
Regular Member


Date Joined Oct 2010
Total Posts : 28
   Posted 10/28/2010 2:36 PM (GMT -6)   
Thanks!

Any one else have any useful information?

Life Happens
Regular Member


Date Joined Oct 2010
Total Posts : 28
   Posted 10/28/2010 3:52 PM (GMT -6)   
I had a sitz markers test done and the transit times were niormal, so it's just the lower left cramping and the outlet problem.

I keep praying to the lord that this will be my way out of pain and onto my life again.
- Diagnosed with IBS ( no luck with Bentyl :( )
- Chronic Pelvic Pain
- OCD/ Anxiety (Currently taking prozac/ xanax as needed)

snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 11/16/2010 6:48 PM (GMT -6)   
1. Can I opt to skip Biofeedback and go for the surgery right away? I've been told it has low success rates.
Most likely no
3. Can the surgeon deny my wishes?
Yes
4. If I got an ostomy, would my colon be removed? Im in constant lower left pain which I believe caused my problems in the first place. It was my beginning symptom. Im hoping they will.
not if you get a temporary one

There's a book called "Headache of the Pelvis" - it was written by a guy - you might want to check it out.
Diagnoses: Colonic Inertia, Rectocele, Anismus
Surgery: November 9, 2010 - subtotal colectomy with anastomosis
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