To answer your questions:
1. No, it doens't smell. Just when you empty. Similar to when you actually go poop. Leaks are rare. I always keep an extra pouch and wafer with me just in case in my purse, but don't often even think about that.
2. I usually empty before it is really noticeable, but even if I don't, no one EVER notices. Even when I think they should notice, they don't. Most people have MANY other things to focus on and also, most people don't realize that ostomies exist.
3. Yes, I sometimes worry about this, but not really.
As for the people who act like this is the worst thing ever, if they had to live the way you are living, they'd think twice. When I was about to have my surgery, one of my friends said, "But you'll never take a satisfying poop again!" And I laughed, becuase I don't think I'd taken a "satisfying" poop in about 10 years. I'm so happy to have my ostomy.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).