Question for Polishdan

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Christine1946
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Date Joined Aug 2008
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   Posted 11/2/2010 2:36 PM (GMT -6)   
     You said your surgeon left your anus intact too?  May I ask where you had your surgery performed (and don't say on your butt..lol) and if you have had any complications?  Thanks.

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 11/2/2010 6:47 PM (GMT -6)   
Christine
My permanent ileostomy was done at Beaumont Hospital, Troy MI. Out of hospital in 4 days. 3 days at home I had terrible pain at 5 AM. No blood pressure. Wife called emergency. Took me to Gladwin hospital. Very small hospital. I think 12 beds. I was there about 5 hours trying to stabilize me, according to my wife. I don't remember a thing. Flew me by helicopter to Beaumont Hospital, Royal Oak, MI. ($18600 for copter) Emergency surgery for peritonitis. Intensive care about a week. Only thing I remember is the surgeon saying "We haven't lost anybody yet and you are not going to spoil our record". The problem was that the tissues in my rectum were so bad that the stitches pulled through. Since then I have had no problem with my anus/rectum.

Would I have been better off if my anus/rectum were removed during first surgery? Good question.

I believe it was the peritonitis that started my Parkinson's Disease.

Dan

Christine1946
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Date Joined Aug 2008
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   Posted 11/2/2010 8:24 PM (GMT -6)   
     Oh wow....some story there!  They took my rectum and  colon out in surgery.  It was my rectum that was the culprit.  My colon was never bad, only a bit of diverticulosis, so I was a bit upset over the fact that with UC they cannot leave the colon in.  I still have problems in the anus though.  I am still oozing mucus but the surgeon said "better out than in."
     My surgeon told me my operation would require at least a 7 day stint in hospital.  His head resident wanted to wisk me out of there 4 days post op and told me I could eat, against MY better judgment.   Needless to say, I got sick as a dog, vomiting my guts out.  Surgeon came in and suggested the ng tube down the gut.   It wasn't too pleasant going down but boy did it ever help with the nausea and brought up tons of bile. He was mad as a hornet at his resident too.  He told me not to listen to ANYBODY but my own body as to when to eat.  I was doing great for a few more days and then same thing happened to me as did you.  Blood pressure dropped to 70/40, temp of 105 and pulse of 152.  Good thing I was still in the hospital.  This happened at 11 pm on vital sign rounds.  Didn't feel sick at all, just wanted to sleep.  Never saw nurses and doctors whirl around so fast...CT scan, blood cultures, xrays...holy crap.  Never did find out what the problem was but they put me on Cipro IV and watched me like a hawk for the next few days.  I believe the body rejects the surgical procedure and needs to adjust itself.  I was in hospital 11 days.  The day I came home, I felt like I had to pass urine and all this horrible smelling gunk came out of me.  I have been draining ever since.  Could be they took the JP tube out too fast after surgery?  It was in at least a week.  Oh well. 
     Do you still have any problems?

polishdan
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Date Joined Mar 2010
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   Posted 11/2/2010 8:32 PM (GMT -6)   
I had some drainage the first few months but that stopped months ago. No pain or irritation. My colectomy was done Nov 8 2007. I have no rectal problems. Three years ago today I was very anemic and sick.

Dan

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 11/2/2010 8:32 PM (GMT -6)   
I had some drainage the first few months but that stopped months ago. No pain or irritation. My colectomy was done Nov 8 2007. I have no rectal problems. Three years ago today I was very anemic and sick.

Dan

LittleSisSmurf
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Date Joined Apr 2006
Total Posts : 164
   Posted 11/3/2010 9:04 AM (GMT -6)   
I just got out of the hospital after 3 weeks. I went into emerg with extreme abdominal pain so they did a ct scan and found 3 interabdominal absesses (5cm.in diameter) swollen kidney, 2 blood clots (one in my aorta,one in my inner hip) The emerg. doc said I was a mess!? They transported me to another hospital better equipped to treat me.
I had one of the absesses drained and was put on 6 diffrent anti biotics till they found the right one to get my white blood cell count down. My kidney had swollen because the absess was blocking the urethra so once the absess was drained...it went back to normal.
They said they didnt know what caused the absesses ....I still had blood and mucus coming out of my rectum 5 months after surgerY?? Which miraculously stopped with anitbiotics?? They also found small absesses around my tailbone? near the rectal stump?
I dont know? Im just glad to be home.
37 yr old woman diagnosed with crohn's colitis 1998.(symptom free for 10 yrs.) The last two yrs. Ive been on prednisone, Imuran, remicade, and humira. Had surgery and got permanent ileostomy may 28th 2010.Son also diagnosed with ulceritive colitus..

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 11/3/2010 9:55 AM (GMT -6)   
LittleSisSmurf
Sounds like you had as much fun as I did. How did they transport you? How far? Any lasting effects from your "mess" or the surgery. You said your son has colitis. I have two sons 41yo and 35yo. Both OK. I have a cousin on my mother's side with UC and a cousin on my father's side with an ileostomy. I didn't have a chance of getting away.

Christine1946
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Date Joined Aug 2008
Total Posts : 5963
   Posted 11/3/2010 1:01 PM (GMT -6)   
     LilSisSmurf....wow, so sorry to hear you were so ill.   Glad that you are recovering though.  What an ordeal!  Do you think this was in any way related to your ileostomy surgery?
     I had to call my ostomy nurse this afternoon.  I have a bad irritation around my stoma where the wafer fits.  He is having me change from the apparatus I am currently using.  He thinks I developed an allergic reaction to it..ugh.  Always something.

LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 11/3/2010 4:17 PM (GMT -6)   
polishdan..I think it had something to do with my surgery since Ive never experienced anything like this before, but the doctors dont think im right. Yet..they have no answers as to what could have caused them? I think my rectal stump was leaking into my body because up until the day I went into emerg.I was having mucus and blood discharge from my rectum. It was still painfull to sit as well. (just my opinion) They also dont know what caused my blood clots?
Christine...thank you. I had the home nurse here today for home I.V. I'll be on antibiotics for another month to shrink the other absesses and if it doesnt work...surgery (sigh)
My bladder is still numb from surgery too.. I have an appointment with a urologist next week. I agree that it is "always something" It just never seems to end?? Oh, well, Im meeting alot of great people. Nurses and doctors....lol Take care
37 yr old woman diagnosed with crohn's colitis 1998.(symptom free for 10 yrs.) The last two yrs. Ive been on prednisone, Imuran, remicade, and humira. Had surgery and got permanent ileostomy may 28th 2010.Son also diagnosed with ulceritive colitus..

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 11/3/2010 4:53 PM (GMT -6)   
Sorry to hear the ordeals of you guys. I hope they won't happen again.
I think I am one of the lucky ones who has his/her anus sewn up during the surgery. I had no problem with my bottom after the surgery except for the funny feeling down there in the first 2 months. I had 2 surgeons performing the operation on me at the same time, one doing the 'major' part---removing the colon and rectum and creating the stoma. The other surgeon sewed up my anus from inside. There was no external stitches. I didn't ask for this arrangement. It's the hospital's common practice. My room-mate had the same surgery done in the same way.

Christine, My skin is very sensitive to the tape of the wafer. I had used Coloplast 1-piece (15511 and 15532). The wafer was good for only 1 day and then I had major leaks. Now I am using Convatec flanges with no tape (413155) and I am very happy so far.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly. Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Previous medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 4/day, Entocort enema, Azathioprine, 6MP

Supplements: Calcium with Vitamin D, Vitamin C, Omega 3, psyllium capsules (Metamucil).

Flared since July 2009. Hospitalized from Nov 22 to Dec 14, 2009. Discharged with Prednisone and Cyclosporine. Hospitalized again on March 15, 2010. Had surgery on March 26, opted for permanent ileostomy and now live a new life.

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 11/3/2010 6:12 PM (GMT -6)   
LilSisSmurf
Leakage at the rectal stump...that is what started my peritonitis, but for me it was 7 days after my colectomy.

Dan
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