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New Member

Date Joined Jun 2010
Total Posts : 12
   Posted 11/3/2010 8:28 AM (GMT -6)   
I am due to have surgery on the 30th November and as its getting closer I am getting more anxious confused I had my ileostomy 8 years ago in December and just made it home in time for xmas , this time I am having my rectal stump removed and tail end sewn up and am worried that I will be in for a long time in hospital cry anyone whos had this done can you tell me how long is the average stay after this op ? thank you all :-)

Post Edited (craftylass) : 11/3/2010 7:39:24 AM (GMT-6)

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 11/3/2010 5:01 PM (GMT -6)   
Hi crafty!
I had both done at the same time and was in the hospital for 5 days.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 11/4/2010 2:36 AM (GMT -6)   
I had my ileostomy in place, too, when I had my colon and rectum removed and was only in the hospital 4 days. For me, there was minimal pain with the rectum removal. It was the 10" incision on my abdomen from the colon removal that really hurt! Thankfully, you won't have that.

My rectum wound was not sewn shut, so I packed it with saline-filled gauze twice a day while it healed from the inside out. It took about 6 months to fully close up, but it didn't hurt at all.

It will be good to get rid of your rectum, especially if it's diseased and is leaking. Mine was full of Crohn's, so I don't miss it at all. Please try not to worry, everything is going to be fine and they will keep you very comfortable with pain medicine.

Hugs and prayers,
:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 11/4/2010 6:13 AM (GMT -6)   
I was in a few extra days than most but it was due to an Ileus. I thought my mid-line hurt more when it had staples in it than my bottom did. The doc's will tell you this but DON'T use a donut pillow when sitting down after surgery.

Good will be even better without that diseased organ!!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

New Member

Date Joined Jun 2010
Total Posts : 12
   Posted 11/15/2010 9:55 AM (GMT -6)   
Thanks everyone really appreciated :) I just completed all my christmas shopping today so thats one thing off my mind , just another question what would members advice to wear into hospital ? I know I will probaly have a gown on for the first few days but once all the tubes and drips are out is it best to wear PJ's or night shirt ? thanks in advance x

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 11/15/2010 1:16 PM (GMT -6)   
i bought shorts and shirts and gowns that were way too big, like i wore a medium and bought 2x, that way they didn't touch me at all! and i bought really cheap stuff, so i could throw it away if i got blood or something on it.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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