How many of you feel weak and fatigued years after your subtotal colectomy or ileostomy?

do you feel weak after subtotal or ileostomy (2 yr post surgery)
yes, it really interferes with what I can do - 40.0%
a little weaker but basically I can keep up with friends - 0.0%
no, I have my energy back same as pre-surgery - 60.0%

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Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 11/4/2010 3:46 PM (GMT -6)   
I am still trying to figure out why I have so little energy all of the time.  I had a subtotal colectomy in april 2009.  For a long time I had diarrhea 10-20 times a day; lately it has slowed down quite a bit (some days just 6 times).  My doctors have done many blood tests and just can't figure out why I always feel so weak.  I used to be a very athletic person and loved to be "on the move" most of the time.  Now, even though I plan out my day and am excited about events, I only last about 2 or 3 hours before feeling that I need to lie down!  Can anyone comment on this?   I ask about people with ileostomies also because that may be in my near future!

Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 11/4/2010 4:08 PM (GMT -6)   
I had my reversal a year ago and I just started working full time about two months ago... Oi! I am exhausted everyday. It is so hard for me to be like my other coworkers even though I am the youngest by far. It seems like I hit a wall around 2pm. No matter how much I sleep, I am tired.

I am going to a nutritionist at the end of the month to see if we can make changes. I hope we can figure this out!:)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009/ Reversal November 2009/ Fistula correction March 2010

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Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 11/4/2010 7:13 PM (GMT -6)   
I have more energy than I did pre-surgery.
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11

Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 11/5/2010 11:13 AM (GMT -6)   
Thanks for your responses, Chassity and Lisa. Everyones body must be so different (or I guess the surgery done). Lisa, can you please explain what they are "reversing" after a J-Pouch. Does that mean you went from having a J-Pouch to an Ileostomy? I hope your doctors can find ways for you to "get" more energy. Chassity, glad you are doing so well. Congratulations on your pregnancy!

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