pregnacy with a stoma

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thetic
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 11/6/2010 8:31 AM (GMT -6)   
what r the risks falling pregnant with an ileostomy?? i am 32 and i was diagnosed with crohn's disease 10 years ago, i have 2 children, my first before i was unwell at 20 years old, my 2nd child i had when i was 27 and i was really unwell during and after my pregnancy, i've had an ileostomy now for two years and i would like some advice on falling pregnant while having an ileostomy. wink

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 11/6/2010 7:06 PM (GMT -6)   
I'm pregnant right now! and I meant to get pregnant. I'm 11 weeks! YEA!

The dr.s told me that the perinatologists will monitor the baby to make sure the baby is growing, but that's all they were concerned about.
Now, I'M concerned with obstruction. But I've consulted with my GI dr., my surgeon, and my OB and all said to go for it.
My surgeon addressed my obstruction concerns by saying that It doesn't happen very often b/c the gut is so moveable, but it is possible. Even though it's possible, it's definitely not a reason to NOT have a baby, b/c the odds are in my favor.
My OB said they would prefer me to have a V birth b/c of scar tissue.

So far, I think all is going well. I had my first baby and my u/c was somewhat controlled with lots of steroids, Asacol, carafate, and whatever else I was on. But I got very sick after and when my daughter was a year, i had surgery. I'm having a lot more symptoms with this baby, and I think it's b/c I was on steroids, and they masked some symptoms. I have morning sickness, heartburn, and extreme fatigue, which I did not have with my first pregnancy. Actually, I feel sicker while I'm 'well', than I felt when I was 'sick'.
Chassity
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11

thetic
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 11/7/2010 5:56 AM (GMT -6)   
chasblah, thanks for sharing your story with me, i am seeing my GI doctor on friday and i am planning on discussing it all with him, i will let u know how i get on.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 11/7/2010 7:37 AM (GMT -6)   
I didn't know you were pregnant, Chassity. Congrats!
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 25 mg (tapering 5mg/week), D, B12, Iron, Prenatal vitamin, Lortab, Humira, Rowasa

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 11/7/2010 5:28 PM (GMT -6)   
Thanks Pam!
Chassity
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11
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