, Thank you so much for sharing your story. Wow, your little guy sure went through a lot in his short life I am so sorry. We too had to make the decision to take Lucas off of life support, or I should have said, by the time I got off work and got home and got the message that he had been in a wreck "why no one called me at work I will never know, and that makes me angry' but by the time I got to the hospital his dad had already taken him off of life support, because his mom was a nurse and told him to let him go.
My good friend was the respiratory therapist that took him off and met me at the door and explained what she did. When I got in there he looked great, just a sm abrasion over his eye and his heart was beating on the monitor...so in my mind I thought he is not gone he is still with us. But she told me that their hearts can beat for like a hour or so after they have been taken off. He had already been in surgery to try to stop all the internal bleeding but they could not, and his leg was broke, and had no brain activity.
OK I have to stop now as I am bawling my eyes out..so I do understand...God be with you..