OT...hair falling out like crazy...over 4 months post op

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Christine1946
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Date Joined Aug 2008
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   Posted 11/10/2010 10:54 AM (GMT -6)   
     Anyone else have this problem?  Could it possibly be a vitamin deficiency?  A few more months like this and I will look like Kojak sad .

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 11/10/2010 2:03 PM (GMT -6)   
its probably just from the stress of the surgery and such. It takes a while for your body to get back to normal
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Scrap Girl
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Date Joined Jan 2007
Total Posts : 653
   Posted 11/10/2010 2:27 PM (GMT -6)   
Christine, I had this after my first surgery that was on April 1. It didn't start right away, probably about six or eight weeks later. It got really bad. Thank goodness, it finally stopped about a month ago. Hope I don't get it again with my subsequent surgeries. Hang in there.

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 11/10/2010 3:07 PM (GMT -6)   
     Scrap girl...is the hair growing back yet?  I'm 64 yrs old...maybe it won't even grow back?  I was thinking of trying Rogaine but afraid of the chemicals in it.  I have been using Nioxin which I purchased from the hair dresser a long time ago, but it isn't helping any.  I have a really nice wig..lol.  People think it is my own hair.

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 11/10/2010 5:43 PM (GMT -6)   
Christine,
Hair loss is totally normal after surgery! I've had hair loss after each of my surgeries. It usually starts several months after surgery and lasts about 4-6 weeks. It's quite upsetting to have lots of hair come out in the shower and in your hairbrush shocked, and I usually cry cry, but remember, it will stop and new hair will grow back! It's just the circle of the hair follicle's life... :-)
Hugs,
Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 11/10/2010 5:53 PM (GMT -6)   
I've been having hair loss for about 5 years. Unsure of why. No one can figure it out. I am hoping it was malnutrition and so will hopefully get better once all of this surgery stress is over. I wear a wig too. I teach 5th grade and my students love telling me which wig is their favorite. I don't mind wearing wigs cuz I like to go shopping for new ones but I'd much rather have my hair back. I really miss it.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 11/10/2010 9:07 PM (GMT -6)   
     Thank you sooo much for your replies and words of encouragement.   Stephanie...I purchased my wigs on line at wigsalon.com.  They have great specials!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 11/10/2010 9:52 PM (GMT -6)   
80'schick, this may sound dumb, but do you use color or perms on your hair, or heat, or even hair spray?
the reason i ask is, years ago, my mom's hair fell out like crazy! and it was a combo of the color and the hair spray she was using. It kept doing it for a long time, and noone ever thought of that, and then, for some reason she stopped getting it colored at the same place, and the other place used a different type, and it stopped. and so it was finally figured out that it was either a combo of what she was using, or just the color, but when she changed hair sprays also, it grew back in much better.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 11/10/2010 10:05 PM (GMT -6)   
Thanks for the ideas, Summer...I actually never really colored it until it fell out. And as for hairspray, I did use it, but switched it up, so I doubt it was that. Plus I haven't used hairspray at all in the past year or so since I've been wearing wigs.

crank
New Member


Date Joined Nov 2010
Total Posts : 9
   Posted 11/10/2010 11:25 PM (GMT -6)   
Christine,

After my surgery my hair was really falling out.had to clean the drain in the tub. My doctor and one nurse in the hospital said to drink Ensure. The nurse said 3 bottles a day. It is expensive but really works. I have been drinking one bottle a day now for about 9 months.

It took about 3 months before the hair stopped falling out completely.

I cannot tell if it is growing back. But I am not bald!!!

crank

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 11/11/2010 5:42 PM (GMT -6)   
     Hmmm...all interesting responces.  I do color my hair myself but the last time I used hair dye, it didn't even take.  That was about three weeks ago.  My hair looks brittle and dry and I do use a blow dryer and hair spray.  I keep my hair very short too.
     Crank....interesting about Ensure.  They gave it to me in the hospital every day and when I came home I used to drink it because I couldn't yet eat everything.  I haven't had it for several months...got sick of it...lol.  It does contain a lot of vitamins and nutrients, so I think I will try it for lunch again.  Thanks.

Scrap Girl
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Date Joined Jan 2007
Total Posts : 653
   Posted 11/11/2010 9:26 PM (GMT -6)   
Christine, yes I think my hair has started growing back. When my hair falls out I always take Biotin 5000 mcg. You can buy it at any drug store for like $5. I think it was Red that first told me about it. Makes a big difference if you take it every day.

crank
New Member


Date Joined Nov 2010
Total Posts : 9
   Posted 11/11/2010 10:46 PM (GMT -6)   
Christine,

They have a new Ensure flavor out it is Coffee Latte. They sent me a sample and I can say it was pretty good. I liked the Wild Berry but they discontinued it.

I haven't been able to find the Coffee Latte in any stores yet.

They also gave it to me in the hospital. The Plus kind 3 times a day. It really helps.

crank

flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 11/12/2010 7:46 PM (GMT -6)   
Look for hair, skin, and nail vitamins at the store. They are good to take, too.

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 11/13/2010 4:45 PM (GMT -6)   
     Bought a bottle of soft gels labeled Longer Stronger Hair and Nails.  The pharmacist said they would be fine to take.  My nails look great, probably because of the calcium I take but my hair...ugh smhair

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 11/13/2010 6:40 PM (GMT -6)   
B-12 shots help grow hair!!!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/13/2010 8:32 PM (GMT -6)   
     OHIO...you must have read my mind!  I was thinking of having my B12 levels tested because of fatigue.
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