MALE with colonic inertia (only 2% of people diagnosed with colonic inertia are males)

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New Member

Date Joined Nov 2010
Total Posts : 2
   Posted 11/10/2010 2:33 PM (GMT -6)   
I am 65 yr. old, retired from the medical field, and living in a large city (350,000 residents) n the South.
I was informed of my very rare disease(very rare since I am a man) in early September 2010.My diagnosis is colonic inertia. I have seen two internists, two gastroenterological specialists, and two colorectal surgeons
( locally) during the past 3 months. I have had every procedure (gastrographen enema, Sitz marker, barium enemas, ad nauseum) and have taken every prescription medication ordered by physicians, during that time frame. As of this date ( November 10, 2010 ) nothing has worked.

I know that the Mayo Clinic and Johns Hopkins (Baltimore, Maryland) are the BEST hospitals in the US. I have chosen to go to Johns Hopkins for my colectomy, because I have several close friends who live in Baltimore, and they will be a great support system for me, pre- and post-op.

I am waiting for an appointment date from Johns Hopkins. My question is this: Are there any males on this website who have had a total colectomy, or has the husband ( or male friend ) of any of the ladies who post on here, had the procedure?

Thank you in advance for any information that you may provide me.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 11/11/2010 9:29 AM (GMT -6)   
Welcome to the forum...a few months ago I did meet a man in his 30's who had been diagnosed. Sorry I don't have any more information than that. I think he did have an ileo, too.

Please keep us posted on your surgery and I hope you'll stick around ... you have first hand knowledge of the man's point of view!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Regular Member

Date Joined Jul 2006
Total Posts : 361
   Posted 11/15/2010 6:27 AM (GMT 0)   
Remember,if you remove the lower sigmoid near your male sex,you could loose tonus or nerve sensation.
That's what i ve been told.I think most surgeons dosen't mention these things much.
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