Considering ileostomy reversal

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calypso007
New Member


Date Joined Nov 2010
Total Posts : 7
   Posted 11/10/2010 9:28 PM (GMT -6)   
I am trying to find out if I have a ileostomy reversal with very little sigmoid colon left, will i have bowel control and is there any dietary limitations....? I am also a diabetic so are there veggie limitations?
calypso

Diagnosed with colon cancer 10-??-08
Transverse colon resection 11-25-08
Ileostomy 12-12-08

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/11/2010 8:25 AM (GMT -6)   
sorry I don't have an answer but I wanted to bump this back to the top for you!

calypso007
New Member


Date Joined Nov 2010
Total Posts : 7
   Posted 11/11/2010 9:17 AM (GMT -6)   
Thank you very much Ohio76. I was hoping there was someone out there that could help me. I don't know what to expect and am scared

calypso

Diagnosed with colon cancer 10-??-08
Transverse colon resection 11-25-08
Ileostomy 12-12-08

Pitz
Regular Member


Date Joined Jul 2007
Total Posts : 84
   Posted 11/11/2010 10:56 PM (GMT -6)   
I had my reversal in January after having my colon removed in June of '09. The surgeon said my rectum looked good, so he left it. Once healed, I had the reversal and have had no control issues, and only occasional "butt burn." I'm not diabetic, so can't help you there, but I do avoid too much sugar as it can be gas-producing, plus I can't have it as I've had gastric bypass and can no longer tolerate too much sugar.

I've never been a big vegetable fan, but I'm able to eat anything I want. I do avoid raw and/or gassy vegetables (broccoli, cauliflower, most beans) and don't eat lettuce as I don't digest them very well. And I haven't had any carbonation since my colectomy as I didn't want the extra gas in the bag, and have continued to avoid it since my reversal. My surgeon said I could eat anything I want. I found what worked for me with the ileostomy works for me now, and I can even eat more as I'm not worried about emptying a bag and have bowel control. I've never had any control problems since my reversal. Another plus has been that I can sleep through the night again. I never really got a good night's sleep with the ileostomy as I had to get up to empty the bag during the night (well, sometimes it decided to empty itself, too!). eyes I do take an occasional immodium or, for me, eating more protein can help to thicken things up. You'll just have to experiment to find out what works for you.

I've had no regrets!

06/2002 - diagnosed w/ulcerative colitis
06/02/09 - colectomy w/ileostomy
01/23/10 - ileostomy takedown; ileorectal anastomosis

calypso007
New Member


Date Joined Nov 2010
Total Posts : 7
   Posted 11/12/2010 1:17 AM (GMT -6)   
Thank you so much Pitz! I was beginning to think I would never get an answer. You have helped me so much and I too am looking forward to getting to sleep all night. It sounds like we basically eat the same things {no sugar} but i do eat a lot of cooked, non-starchy veggies {about a cup at every meal}. My biggest issue with my foods is mushrooms. Can I ask you how many times you empty your bowels a day? When did you get your gastric bypass? how is it working for you?
calypso

Diagnosed with colon cancer 10-??-08
Transverse colon resection 11-25-08
Ileostomy 12-12-08

EuroYank
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 12/8/2010 3:44 AM (GMT -6)   
Hey Calypso,

I just had my ileostomy take-down three weeks ago and I'm doing pretty well! I'm eating mostly everything, and I've had diarrhea a few times (which mean more trips to the toilet), but I'm starting to have normal BMs again! It's amazing... and I only go to the toilet about 5-6 times now -- fewer times than when I was emptying my ileostomy bag. I do have a lot of gas, though... so probably best to stick with cooked veggies and nothing the produces a lot of gas (onions, cabbage, etc..)

Good luck!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
colorectal cancer diagnosed 8/2009
LAR surgery and temporary ileostomy 11/2009
Tumor stage IIIc / T3 N2 R0 M0
8 cycles adjuvant chemo with XELOX
ileostomy takedown 11/2010
Doing Great!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
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