What are your energy levels like?

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elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 11/17/2010 9:53 AM (GMT -6)   
Hi all,
 
I have ulcerative colitis and will be getting j-pouch surgery pretty soon. I just wanted to hear from some of you on what your post-surgery energy levels are like compared to before surgery. I'm hoping that I'll be more energetic after surgery, because in my current health I never seem to have any energy. This is probably because I'm almost constantly anemic, which hopefully will no longer be the case after surgery! I just woke up a few hours ago from nine hours of sleep, and already I feel like I need a nap. I'll be going back to college after I've recovered from surgery and I want nothing more than to have the energy to get heavily involved in the college community and do a lot of extracurriculars!
 
Yawn,
Rachel
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6MP.
Flared again in 2009 as 6MP lost effectiveness, went on TPN and had several blood transfusions. Started Remicade, which induced remission.
Flaring again now as Remicade has lost effectiveness; J-pouch surgery has been recommended to me, seeking a surgeon at this time.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/17/2010 10:04 AM (GMT -6)   
Having had jpouch surgery for UC and after a 2 year severe flare which resulted in anemia and loss of B-12, I am happy to say that my pre-illness energy levels returned. But it took about a year post surgery to lose the fatigure; I napped every day. That wasn't a year of sitting around, I began hiking again right out of surgery and completed a half marathon 6 months post surgery. My surgeon said I could do what I wanted, in terms of exercise, but to rest when I was fatigued. Be patient, recovery is slow but you will rebound.

Sue

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 11/17/2010 10:23 AM (GMT -6)   
Took me about 3 months after surgery to get back to my normal energy level.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Temp Ileostomy and colon removal surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Takedown surgery - 8/?/2010

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 11/17/2010 3:32 PM (GMT -6)   
     I don't have much energy.  My operation was June 28th.  However, I suffered with ulcerative proctitis for twelve years, the last two I was prednisone dependent.  Another factor...I had the surgery at age 63 (am now 64). 
     My family doctor requested a lot of blood work, which I am having drawn on Monday.  This will tell whether my B12 level is normal, among other things.  My hair has been falling out too.
     Otherwise, things are going very well.  My family doctor told me on Monday that considering the operation I had...total colectomy and permanent ileostomy...I am doing fantastic smilewinkgrin !
     The best of luck to you!!!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/17/2010 6:54 PM (GMT -6)   
Rachel,
My energy level is through the roof compared to how I felt before surgery. I used to be anemic and tired all the time, too, and needed blood transfusions, as well. Thankfully, I'm not anemic anymore. You will be blown away by how much better you're going to feel once you get that diseased colon out of you. I'm excited for you to get your energy back! turn
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/17/2010 7:55 PM (GMT -6)   
im much more energetic than before surgery. the time change has messed me up, ive had a nap everyday, lol, but i still feel tons better and have a thousand times more energy!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 11/18/2010 6:50 PM (GMT -6)   
flchurchlady said...
Rachel,
My energy level is through the roof compared to how I felt before surgery. I used to be anemic and tired all the time, too, and needed blood transfusions, as well. Thankfully, I'm not anemic anymore. You will be blown away by how much better you're going to feel once you get that diseased colon out of you. I'm excited for you to get your energy back! turn
Cecilia


ditto to everything!!

like sue said, surgery takes it outta you, but once your fully healed, which is usually around 1 year from j-pouch as to everything i've read, you should be in tip top shape!

I'm still in my occasionally tired just from surgery recovery phase, but its not like before when i was tired all the time. I wake up and go about my day and since my job is standing for 8 hours i'm usually wiped by 5:00 but it's getting better everyday. and weekend when i dont do so much physical activity i don't really get tired at all anymore, its great!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-Now IBD is indeterminate tests will be done after healing if still UC J-pouch surgery, if Chron's take down of colostomy
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