ileostomy info

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66 mustang guy
New Member

Date Joined Nov 2010
Total Posts : 17
   Posted 11/24/2010 8:23 PM (GMT -6)   
Just had surgery at Cleveland Clinic on Oct. 29th, I had a colostomy for 22 years due to crohns disease, this time they took my colon leaving me with a ileostomy, I go all the time will this get better so I have some control, I read on this site how much better the ileostomy is, I know its early but I don't know what to expect.

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 11/24/2010 10:12 PM (GMT -6)   
     The output should slow down with time.  At least mine did.

Regular Member

Date Joined Nov 2010
Total Posts : 37
   Posted 11/24/2010 11:47 PM (GMT -6)   
I have had an ileostomy for 18 months now. I still have a lot of output form it so I started to take imodium and it seems to be helping but not a cure all. I hope it works for you. Let me know

Currently on

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 11/24/2010 11:49 PM (GMT -6)   
yeah your output will slow down after time, it just takes a while for your stomach to adjust
if you arent already, try some immodium, and thickening foods. Like bananas, french fries, bread. things like juice, soda, apples (for me bbq sauce) increase output. Doesn't mean you can't eat them, just means you may have more output if you eat them. Also artifical sweetners are a big culprit.
i know how hard it is to get used to! good luck, and ask anything you need to!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

66 mustang guy
New Member

Date Joined Nov 2010
Total Posts : 17
   Posted 11/25/2010 9:35 AM (GMT -6)   
Thanks, it means a lot to talk to people who have dealt with this and can give advice to newbies.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 11/26/2010 7:46 AM (GMT -6)   
I am not sure that ileostomies are easier/harder than colostomies...but they certainly are different!

Some people have periods when the stoma is quiet (I have a few hours during the day) but generally ileos can function 24 hours a day. They can be controlled with fiber supplements and Imodium but I have found that by altering my diet I don't need the supplements. Unfortunately, ileostomies cannot be irrigated shakehead

The BRAT diet that summerstorm suggested is great for this stage of your recovery and your small intestine will eventually 'learn' that it doesn't have it's counterpart and will adjust how it works. Sugar and caffeine speed up your transit time and artificial sweeteners can do the same.

Did you get instructions for a low fiber diet for 6 weeks? If you did, when you start eating, make sure you keep track of new foods and only try one new one at a time...and just because something bothers you now, try it again in a few weeks/months because it might not later on!

Good Luck with your new ileo...and if you don't mind me asking, in another thread I think you mentioned you are having small intestine involvement now...what are your problems with your small intestine? Did you have small intestine involvement before? Are you on medication now, too? Did you have a proctocolectomy or a total colectomy?

Welcome to the forum, too yeah
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!
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