Phantom Rectum

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Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 11/28/2010 10:50 AM (GMT -6)   
I am three weeks post-surgery, and I have been having annoying feelings like I have to have a bowel movement. I know this is impossible since my rectum is completely removed and my anus sewn shut. This isn't painful, it just feels like I have to go. It seems worse when I have gas pains. Anyone have experience with this? Does it usually go away as you heal from your surgery?

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/28/2010 12:13 PM (GMT -6)   
I assume it will. I had the opposite problem, a phantom ileostomy. After my reversal it still felt as if my ileostomy was emptying. It faded in time.

Sue

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/28/2010 12:45 PM (GMT -6)   
yeah it does that sometimes, its weird, but it will lessen after time. I still have it occasionally esp if i have to pee really bad. Just sit on the toilet for a few minutes and pretend you are going. Its just like when people have a leg removed but still feel a pain in it or something.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/28/2010 6:49 PM (GMT -6)   
     I used to get that feeling a lot after my perm ileo.  My anus is NOT sewn shut.  Geez, am I the only one in here that has a total colectomy with permanent ileostomy and the surgeon did NOT sew the anus closed?  My family doctor has never heard of a case where the surgeon did this.  I asked the surgeon and, in his opinion, he said there are more complications when sewn shut.  This may be possible because in Sept (had my surgery June 28th), I felt a lot of pressure in the anus.  The surgeon placed an anuscope up my butt and siphoned out a bunch of pus and blood from a hematoma.  He said that happens quite frequently post surgery.  I still have mucus draining.  He said that it is a good thing the mucus comes out.   Had my anus been sewn closed...where would that mucus be going?

snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 11/29/2010 9:04 AM (GMT -6)   
Your pelvic floor may be having spasms. I would assume it will go away in time. If it starts to become painful vs. uncomfortable I'd see your doctor about it sooner.
Diagnoses: Colonic Inertia, Rectocele, Anismus
Surgery: November 9, 2010 - subtotal colectomy with anastomosis

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 11/30/2010 9:57 AM (GMT -6)   
Christine- seems like every surgeon has their own opinion on this.  There probably no right or wrong way.  My question about the mucus is that if my rectum and anus are totally missing, where would mucus even come from? I don't think I have any building up as my incision in my rear has healed very well and I have no signs of anything wrong down there... just a feeling like I have to have a BM.  Especially after I eat something.

-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously since then except for a short 4 month remission during the summer of 2010.
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares.
-Now in hospital with severe flare that will not respond to Prednisone or iv steroids.
-Trying Remicade to get me out of the hospital and to surgery.

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 11/30/2010 11:57 AM (GMT -6)   
I still get it occasionally. about a month after the initial surgery I was driving and had such an overwhelming "urge to go" that I actually did the Crohn's quick route to a washroom ie: cut across traffic/ignore signal lights. I realized it was a "phantom bum pain" and got all giddy realizing I didn't have to worry about soiling myself yet again. Now when I get the urge I thank the man above that Oscar (my ostomy) has come into my life.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."
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