OMG, I just lost my long post to you. GRRRRRRR
Okay, here we go again. Murphysmom, hello and welcome.
I had colonic inertia and an obstructive defecation syndrome. This means that my colon was slow and I could not release stool or gas from the rectum normally. I also suffered with nausea, heartburn, and extreme bloat. I could not eat alot of food at one time, or else I could not eat at all. There were even times when I could not even drink a sip of water. I had to sleep sitting up or else my food and stomach acids would back up into my throat.
I saw a few gastro doctors and 3 colorectal surgeons. I was told to eat small, frequent meals and to take as much miralax as I needed to make my bowels move. I was also prescribed nexium and zofran. I spent several hours in the bathroom daily, using suppositories, enemas, and manually removing stool from my rectum.
In June, I had some of my colon removed, rectal repairs, and a temporary loop ileostomy to allow the areas to heal and also allow me a break from my disgusting bathroom acrobats.
Well, since then my quality of life has improved 100%. I can eat normally now and even have to make sure I don't overeat since I don't think I ever truly felt hungry in my entire life.
I can sleep laying down and no longer suffer with relentless nausea and heartburn. I take zofran now once or twice a week compared to 3x a day before surgery.
Having the bag is not bad at all and I can go hours now without even feeling that I have the bag on. It just now feels like a part of my clothing.
Did you take a sitz marker test? If so, what were the results of that? I know I have read and was told by my doctor that if you are diagnosed with colonic inertia, that removal of the entire colon is recommended as leaving only a few inches usually causes the same symptoms of constipation and usually requires another surgery to remove the remaining colon.
Do you have any type of pelvic floor dysfunction? Can you get the stool out if you can get it to the rectum?
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with re
location of stoma.