Trixiemom, Christine, and Crohn's,
Thank you for your kind words. 1) Yes, I WAS supposed to receive help from a wound care nurse--finally connected with her yesterday (almost 2 weeks out of the hopsital). "No body knows" how I slipped through the cracks!!!!!!! (I live in a fairly small town--$27,000--in Ohio. I think health care here is not up to standards! I wasn't impressed with the majority of my nurses.) Anyway, my wound care nurse was most helpful and promises to get me through this. Among other things, she gave me a belt, to help hold the wafer tightly in place. I am also now usuing a convex wafer. (I don't have the name in front of me, sorry) with replaceable bag. The first one held for almost 10 hours. They cost $14.00 EACH. the second one held for about 1/2 hour. I am hoping for better from the third one, I just put on. Guess I ought to get the diapers back on!
2)The ileostomy. Well, I can tell you what my surgeon said, though I am not sure this will explain a lot (you are the experts, in my opinion!) Following the surgery, they go up through the rectum to staple the two pieces of colon back together. All rectums have kinks. Apparently, mine was SO kinked, that a second surgeon was brought in. Because of the irritation to the rectum and lower bowel, I was given the stoma. Why is it so high? No idea. But it's opening, and the surgery site (which we are packing) are about 1.5 inches a part. So any bag leaks get into the surgery site. Doesn't sound like a good situation to me, but I see my surgeon today. (Tuesday).
Again, thank yo for being so kind. This whole bag mess, when my strength is limited as I am recovering from surgery, has drained me and left me very emotional.