I'm New, HELP!!

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Jeanne60
New Member


Date Joined Dec 2010
Total Posts : 2
   Posted 12/5/2010 8:58 AM (GMT -6)   
Following a Sigmoidectomy, with complications, I woke up with an Ileostomy bag.  It is to be temporary, but my surgeon says two months before the reversal.  My problem?  I think I am allergic to the "glue" on the bags, and defin itely allergic to any tape I have tried.  8 out of 10 bags have leaked, leaving me raw to the point of seeping blood.  I was so frsutrated and in pain that last night, my husband took me to the ER at midnight.  I am now bagless.  The raw areas have been glopped with diaper rash treatment (and Lidocaine).  But--what do I do, to cointain the stool?  I am currently packed with papertowels, and made a diaper of sorts out of an old towel.  I will get Depends, i guess.  But the leaky stoma and still open surgery site are very close together.  Any suggestions for those of you who are now experts in this field?

Trixiemom
Regular Member


Date Joined Nov 2010
Total Posts : 89
   Posted 12/5/2010 10:25 AM (GMT -6)   
Hi Jeanne60..welcome to the board...the only thing I can suggest is to get to your wocn immediately!! She can help you with your allergy problems and you can call the manufactures and ask them for suggestions also. But first and foremost contact your ostomy nurse (wocn) God Bless hope this helps Trixiemom
have loop ileostomy
diagnosed with colon inertia
2 1/2 weeks doing well

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/5/2010 11:11 AM (GMT -6)   
     Hi Jeanne, soooo sorry to hear you are suffering like this.  I agree with Trixiemom.  Didn't the hospital assign you a wound care nurse?  When I had my operation in June, I had one come every day.  Then, when I came home I was put in contact with home health care nurses for about a month.  The wound care nurse from the hospital gave me his cell phone number and told me to call whenever I had a problem.  I only had to call him once but he was extremely helpful.
     I don't know what type of bag you were wearing but Hollister bags leaked on me.  I wear the Coloplast, filtered, one piece type and have had good luck so far.  I did get irritation under the wafer but use the stoma powder and it seems to be helping.
     Good luck to you.  By the way, what the heck happened during the sigmoidoscope that you woke up with a bag?  They don't usually go up very high during a sigmoidoscope.  I always had them done while awake in my GI's office except for the very last one he performed back in March.  I was so badly ulcerated in the rectum that they had to put me out and the test was done at the surgical center.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/6/2010 9:46 PM (GMT -6)   
Here's a link to the WOC Nurse Association to find a nurse in your area quickly!!!!!

http://www.wocncenter.com/public/member_directory.cfm

Not having an appliance on can cause more issues...If you are allergic to the tape on the wafers you can cut that portion completely off. But that solution will only work if you only allergic to the 'tape' portion (the part around the stoma is a wax not an adhesive).

You could be reacting to that one brand and might fare better with another one...but always do a skin test before using the wafer!

Welcome to the forum...glad you found us!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Jeanne60
New Member


Date Joined Dec 2010
Total Posts : 2
   Posted 12/7/2010 8:41 AM (GMT -6)   
Trixiemom, Christine, and Crohn's,
 
Thank you for your kind words.  1)  Yes, I WAS supposed to receive help from a wound care nurse--finally connected with her yesterday (almost 2 weeks out of the hopsital).  "No body knows" how I slipped through the cracks!!!!!!!  (I live in a fairly small town--$27,000--in Ohio.  I think health care here is not up to standards!  I wasn't impressed with the majority of my nurses.)  Anyway, my wound care nurse was most helpful and promises to get me through this.  Among other things, she gave me a belt, to help hold the wafer tightly in place.  I am also now usuing a convex wafer.  (I don't have the name in front of me, sorry) with replaceable bag.  The first one held for almost 10 hours.  They cost $14.00 EACH.  the second one held for about 1/2 hour.  I am hoping for better from the third one, I just put on.  Guess I ought to get the diapers back on!
 
2)The ileostomy.  Well, I can tell you what my surgeon said, though I am not sure this will explain a lot (you are the experts, in my opinion!)  Following the surgery, they go up through the rectum to staple the two pieces of colon back together.  All rectums have kinks.  Apparently, mine was SO kinked, that a second surgeon was brought in.  Because of the irritation to the rectum and lower bowel, I was given the stoma.  Why is it so high?  No idea.  But it's opening, and the surgery site (which we are packing) are about 1.5 inches a part.  So any bag leaks get into the surgery site.  Doesn't sound like a good situation to me, but I see my surgeon today. (Tuesday).
 
Again, thank yo for being so kind.  This whole bag mess, when my strength is limited as I am recovering from surgery, has drained me and left me very emotional.
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