UP is gone BUT

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Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 12/5/2010 11:02 AM (GMT -6)   
     Hate to sound like all gloom and doom, however, the surgery cured my ulcerative proctitis and for that I am eternally grateful, but....I suppose the dependency on prednisone held my RA at bay for years.  It runs in my mother's side of the family (unfortunately I inherited all the rotten parts from both sides of my family..lol) and since being off the prednisone since August my back, legs and hands ache like heck.  I started taking Aleve and wearing Icy Hot patches. sad    Guess I cannot do anything more about it.  Oh well, I'm 64 yrs old smhair ...I can't expect to feel like I did when I was 20.

kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 12/12/2010 6:10 PM (GMT -6)   
Just checking to see how you are doing.  Sorry, other problems have appeared or gotten worse.  Like you say - age and your family background has something to do with it I am sure.
my UP is good - I have not been using medication - except occasionally when I feel a twinge of discomfort.  I take Imodium for cramping once in a while and pepto for nausea.  Corifoam and Anusol is there but haven't used it in weeks.  Just hope it continues as my husband is not so well with his heart and lungs! 
Elaine

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 12/12/2010 6:20 PM (GMT -6)   
      Hi Elaine!  Good to hear from you, although sorry about your husband's health.  Glad you are doing better.  I started taking Flagyl again on my own because when I took it before it helped with the drainage.  But, today I am bleeding.  I still think it is coming out my vagina but the surgeon said no, unless there is a tear near the anus and vagina.  UGH!

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 12/15/2010 5:34 PM (GMT 0)   
It seems that most of "us" have something else to go along with our ostomies. I am lucky enough to have Parkinson's Disease.....still in the early stages. Don't know what I will do later.

Dan

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/15/2010 6:38 PM (GMT -6)   
     Sorry to hear that Dan.  We have a good friend with the aggressive form of Parkinson's.  Either that, or he was diagnosed late.  He isn't doing well at all and was diagnosed about a year and a half ago.  However, a distant cousin of mine was diagnosed while still in his 30's and lived to be 76!!  I suppose it is how one responds to the medication.  Very similar to those of us who suffer with ulcerative colitis/proctitis.  Many people respond well to medication and then there are people like me who had to have their colons removed confused .  Oh well, there is always someone worse off.

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 12/15/2010 8:29 PM (GMT -6)   
Christine, use a tampon and see if the bleeding is indeed through your vagina? If no blood, then you will know it is coming from your anus????
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 12/15/2010 9:15 PM (GMT -6)   
Christine
PD is not a killer, just makes you suffer. What can you tell me about your friend with PD? Medications? I take some EXPENSIVE medications. You would not know that I have PD. The meds cover it up pretty well.

Interested
Dan

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/15/2010 10:16 PM (GMT -6)   
     I don't know the medications he takes but I think some are experimental.  He said he went misdiagnosed for a long period of time.  They were treating him for some other disease.
     Tracy...a tampon??? Geez, I haven't stuck one up there in over twenty years..yuk.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 12/15/2010 10:32 PM (GMT -6)   
I am sorry you're not feeling great Christine. Hopefully flagyl helps and you can find something less evil than prednisone to manage your RA symptoms.
Co-moderator: Ulcerative Colitis
03/07: Mild Proctitis | 08/08: Pancolitis! | 09/08: FLARE & Anemic Asacol (9) + Canasa | 01/10: FLARE AGAIN!! Asacol + Prednisone + Canasa | Currently: doing OK - Asacol + Canasa + 6mp + Allupurinol + Prednisone (tapering again...)
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