how do you know the Gyn system of your daughter is affected as well? I also experience symtoms in this regard which had let me think about the possibility of the syndrome affecting the GYN smooth muslces as well...do you know if your daughter suffers from a neuropathic or myopathic variant of CIP?
And what do you do against the bladder problem? Does your daughter catheterize herself?? Is she painfree in this regard? Which problems did she have with the urogenital system before?