I was so scared to read the replies because I was afraid I'd hit more brick walls!!
But honestly, THANK YOU all for your thoughtful replies.
Ohio, I have tried the convex barrier rings with other flat wafers, and I'm not sure why, but they don't work at all--I still leak. Is the Coloplast Assura convex? AND no tape? (fingers crossed!) Keep us posted on the cymed with convexity!
WeirdBeard, thank you so much for your info. I will give all of those things a try.
Tracy, I see a derm for other things but never considered asking about
this. I feel like people who don't know about
ostomies would freak out seeing one! I will check with my derm to see their thoughts on treating me though. Good to have another option.
Again, thank you all.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).