Problems with Total Colectomy with re-conection J-pouch

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Date Joined May 2009
Total Posts : 833
   Posted 12/9/2010 12:28 AM (GMT -6)   
Hello everyone,  Well thought I had ilius again and went to the hospital on Sunday, and they did another CT Scan, and found that my J-Pouch where the 2 ends were re-attached had stenosis, narrowing, so off they took me to surgery right away.  They got in and found that my connectons had narrowed down to where you could not get a pencil through either end of the pouch so they dialated it to the size of a quarter, and found 2 ulcers and biopsyed it and then I stayed in the hospital till this afternoon.
The doc told me that he thinks I have a problem further up than my pouch causing a problem as they were not able to go any further because the enemas they gave me before the surgery did not move the pooo, so now I have to be seen again as the parts he dialated will probably shrink back down to that size and will have to go back in again soon to try a to insert a balloon in each end to keep it open and will need some steriod injections for the ulcers, and if he cant do it without rupturing it I will need to go to OSHU to have surgery and may end up with a appliance if things do not go well...  so now I am at home in excruciating pain cuz when they dialate the ends all the nerves really cause pain and he sent me home with no meds..and my regualr vicodin does not help.
Has anyone else who has been reconnected ever delt with this...  ??  OMG will it ever end...Yikes.
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