I'm writing from the hospital...I came into the ER tonight thinking I probably have another obstruction, and they just did a cat scan and when they get the results they will probably admit me. I have had no output for about 12 hours... :( I'm so discouraged. This is coming right when I was starting to think that maybe I was going to be ok. I only had my ileostomy in March, and then a blockage/revision in June, and then removal of scar tissue in Sept, and here I am facing a FOURTH surgery in less than a year from my original one.
I was just starting to get over my fear of every little pain becoming a hospital stay and now I'm right back at square one. I feel like I'll never be normal. I hate this. Not to mention that, just like the first obstruction, I drove myself to the hospital and am sitting here by myself AGAIN. Being alone in the hospital sucks.
Plus now I'm going to have to miss FIVE christmas parties I have this week and my students (I teach 5th grade) will have their holiday party without me. I am done missing out on life. This is hell. :(
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).