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Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 12/14/2010 3:17 PM (GMT -6)   
I am currently using a one-piece appliance since I am recently out of surgery. However, I would like to order some two-piece appliances soon. The pattern piece I created for my oval-shaped stoma is exactly 1 3/4 at its longest point (this measurement includes my stoma and about 1/16 to 1/8 inch around it). The nurse at the hospital gave me a sample of a Coloplast Sensura Click two-piece pouch and flange that has a maximum cutting mark of 1 3/4 inch. However, when I hold this up to my pattern, it looks too small to me. There is only about an 1/8 inch between the edge of my stoma pattern piece and the plastic ring of the flange. My catalog lists that this flange fits 1 3/4 inch stomas, but I am wondering if I should go up to the 2 1/4 inch size. The only problem with that is that the adhesive wafer on this size is so much larger... it looks like it will take up 1/2 of my belly! Thoughts as to which size is better?
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

newcaney
New Member


Date Joined Dec 2010
Total Posts : 17
   Posted 12/14/2010 3:42 PM (GMT -6)   
 
 Did they tell you that your stoma might shrink in size after about 30 days, I found this out the hard way was cutting wafer 1 1/4 started noticeing bad stinging went to ostomy nurse she refitted me to 7/8 she was life saver. You really want it to fit just over your stoma I also use small amount of the paste not much you can get your finger wet and form the paste. not sure if any of this helped you.
 
 I have had mine since August 2010 had retal cancer removed. Please make sure to ask your nurse about shrinking stoma have them refit you.
 
 
 Dale

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 12/14/2010 4:18 PM (GMT -6)   
Thanks Dale. Yes, I have been creating a new pattern each time I change my pouch as my stoma is shrinking a bit. Nothing major... has shrunk maybe about an 1/8 inch in about 6 weeks. My question revolves more about what size flange to choose for the two-piece systems for my 1 3/4 inch stoma. For instance, many of the Coloplast cut-to-fit ones come in sizes to fit stomas 3/8" to 1 1/2", 3/8" to 1 3/4" and 3/8" to 2 1/4". I am trying to decide between the 3/8" to 1 3/4" and the 3/8" to 2 1/4". The sample I have that goes up to 1 3/4" just looks so small when I hold it up to my stoma pattern.

I realize down the line I may have to change sizes as my stoma continues to shrink.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 12/14/2010 8:03 PM (GMT -6)   
Blueheron
Convatec has several options. Some you cut, some you roll the opening back to make the shape and size you need. Call convatec and tell them what you are working with and they can advise you and send samples.

convatec phone 800 422 8811

Dan

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/17/2010 6:50 AM (GMT -6)   
I'd stay with the smaller one. At least give it a try and see how it goes. If you have problems with it you can get a sample of the larger one and try it out but I don't think you'll have a problem with the smaller one.
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 12/17/2010 4:31 PM (GMT -6)   
I agree with Ohio. You probably won't know what will work better until you try.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 
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