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collumj
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/22/2010 1:25 PM (GMT -6)   
Hello all,
  I am 23 years old and am going on three years of having an ileostomy due to Crohn's disease. I was scheduled to get a reversal in January but cancelled because of fear that I would probably get sick again and life is good with the bag. I am a very active person who plays flag football, soccer, and any other sport that my gaurd can protect me against getting hurt. I was wondering though if anyone knew of any wafers that are good for active people like me. I am currently using one from Hollister that when I do any activity such as running or playing a sport I usually have to change it within a day or two after. I was wondering if anyone knew of a wafer that doe not wear as easy?

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/22/2010 8:22 PM (GMT -6)   
I use Convatec's moldable wafer with a sure seal over that and I can get 7 days wear time. You can call convatec and ask for samples.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/22/2010 10:06 PM (GMT -6)   
I am active and find the Coloplast Assura Extended Wear gives me 6-7 days wear time. I also use a Sure Seal with every change. I haven't had a problem with running 20 +/- miles a week with one wafer:)
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/22/2010 11:24 PM (GMT -6)   
i use hollister, and while i dont do all those things, in the summer i swim a lot and i do my insanity workout almost everyday, and it doesnt cause me a problem.
are you using a skin prep?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/23/2010 11:28 PM (GMT -6)   
What is the "sure seal" that so many of you talk about? I am still fairly new to this world, 3 months today.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/24/2010 7:30 AM (GMT -6)   
here's a link to their website:

www.alpglobal.com/

It's a breathable/waterproof membrane that protects your wafer from water/sweat and can extend your wear time:)
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Trixiemom
Regular Member


Date Joined Nov 2010
Total Posts : 89
   Posted 12/24/2010 5:18 PM (GMT -6)   
I love the sure seals...they are a clear thin covering for your flange. Today I took a shower took off the bag not the flange and it was great. the only thing is not many companies carry them. Trixiemom
have loop ileostomy
diagnosed with colon inertia
2 1/2 weeks doing well

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 12/25/2010 10:30 AM (GMT -6)   
does convetec sell the sure seals?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/25/2010 11:45 PM (GMT -6)   
its one company that sells them, its not like hollister or convatec have their own version. And they are the super best thing ever!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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