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66 mustang guy
New Member


Date Joined Nov 2010
Total Posts : 17
   Posted 12/28/2010 10:28 AM (GMT -6)   
Hello everyone, 7 weeks since my surgery (permanent ileostomy) my output still hasn't slowed down any, I read in my material the cleveland clinic gave me and have read on this site about using imodium, they say take 2 tablets 30 minutes before meals and 2 tablets before bed, how often do you use it and do you use it everyday? I would think using too much of it might cause complications.
Crohns since 1984
Three resections then colostomy in 1988
Another resection in 1992
Crohns came back after eighteen years with a fury in Feb. 2010
End result was a ileo Oct. 31

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/28/2010 11:22 AM (GMT -6)   
     HI mustang guy!  What is your diet like?  They say eating marshmallows can thicken up the output.  I don't have this problem.  My output thickened up while in the hospital.

GassyLassy
Regular Member


Date Joined Nov 2006
Total Posts : 88
   Posted 12/28/2010 12:41 PM (GMT -6)   
Hi Mustang, I've been having the same problems ....and Im 3 months into it ... It apparently can take a while. I do eat the thickening foods ... cheese, rice, pasta ...marshmallows ...but can't say I find they work for me very often. I wasn't taking enough immodium ...I found when I upped my dose it worked a little better... I take 2 at a time ....before bed ...first thing in morning and one or two in afternoon..... but, not every day as I'm sure it can't be good for you all the time. My output of both urine and stool can be up to 3 litres a day.... I take note so I can keep up with fluids....you don't want to get dehydrated. I get my reversal next month so I suppose I'm not too worried ....:-) Hope it gets better for you :-)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/28/2010 4:31 PM (GMT -6)   
66 Mustang Guy~ take it while your body is adjusting. Did they give you instructions for Metamucil (or something like it)? Sometimes we need the combination of the bulking and slowing things down to get a handle on it. I had very high output in the beginning but once I could eat real food things settled down and I could adjust and eventually eliminate those two.

Do you feel dehydrated? If you do, the best thing would be to call your doc and make arrangements for IV Fluids.

Are you drinking a lot without eating? Do you drink sugary drinks?
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

66 mustang guy
New Member


Date Joined Nov 2010
Total Posts : 17
   Posted 12/28/2010 5:15 PM (GMT -6)   
I usually eat oatmeal and half a muffin with peanut butter on it for breakfast if not that I eat one egg and half a muffin, sometimes I don't eat anything for lunch if I do eat it is a sandwich and a few chips, for supper I try to eat rice or potatoes with my meal, I don't eat a lot of sweets although I have eaten some due to Christmas, I drink a small bit of pepsi in the evenings, maybe a third of a bottle, They did mention metamucil in my instructions, I haven't tried marshmallows but I will, I've read as Ohio says that things will get better down the road I hope thats true for me, I can't imagine golfing when I am like this or hunting with friends, I guess there are tricks to learn to help deal with it, I am just trying to stay upbeat and not get depressed, thanks for your help.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/28/2010 11:53 PM (GMT -6)   
the pepsi might be contributing, and the chips might also, the grease in them. what else do you drink during the day
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/29/2010 7:59 AM (GMT -6)   
66 mustang guy~you'll be golfing and hunting before you know it yeah

You are only 7 weeks out and remember...small meals (or snacks) throughout the day will keep your system processing food. I find that if I miss a meal/snack it messes up my system for a little while. Pretzels or peanut butter crackers are good for snacks since they have some salt to help retain water and will give you the needed food. If you don't have other medical issues you should salt your food, too, since that helps ileostomates retain fluids as well.

You should have just had your 6 week check up...is your surgeon concerned?

What color is your Mustang?????
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

66 mustang guy
New Member


Date Joined Nov 2010
Total Posts : 17
   Posted 12/29/2010 10:30 AM (GMT -6)   
I missed my 6 week checkup due to the snow, I live in West Virginia and it was really bad that day, we called and the nurse said they canceled school and she was going home herself, we said well reschedule us we wont be heading towards Cleveland today, I have another appointment scheduled for Jan. 5th, I will go over this with my surgeon and get his opinion, I just don't want to try to fix something that will fix itself in time, The mustang is nightmist blue.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/29/2010 11:51 AM (GMT -6)   
I also suffered from too much output after my temporary loop ileo and found that eating baby food bananas really helped to thicken the output up. I also took immodium, but only if my output exceeded the 1200ml per day. Real bananas give me diarrhea, so I stick to the pureed bananas.

I am now 6 months out from surgery and have seen a huge improvement with the output. It is definitely less and has thickened up some.

Your body will adjust. It has not gotten the signal that your colon is out of the picture and that the small intestine needs to absorb more fluid, but hang in there, it will.

about the immodium, my doctor said I can take it everyday if I wanted to. Ask your doctor and see what his view on this may be.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 12/29/2010 7:19 PM (GMT -6)   
Mustang,

Like Tracy said, over time the body adjusts once it realizes the colon is no longer part of the picture. BUT, that Pepsi needs to go......that is sugar AND caffeine. Sounds like that could be your issue. Sugar, fake sugar, fruit juices, tea (caf or decaf), and chocolate are "thinners" for me especially grape juice.

good luck, Rosemary

garanmoldu
New Member


Date Joined Oct 2010
Total Posts : 19
   Posted 12/31/2010 8:22 AM (GMT -6)   
hi im only just 3 weeks out of the surgery but im on immodium, im prescribed for one at a time 4 times a day but they said il see myself how many i need, i usually take 2 now, morning and night, ive found that my output is still liquid in the morning though, doesnt seen to matter what i do, thought it was cos i went so long without eating but ate in the middle of the night last night when i got up to empty bag and liquid this morning. was worried about it still being so liquidy until i read this thread,much better now, but hate this whole waiting months to get better thing cry
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