THAT smell........... and other stuff

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bearbear3
Regular Member


Date Joined Nov 2010
Total Posts : 61
   Posted 12/28/2010 7:11 PM (GMT -6)   
Okay so I'm moving along and getting back to life. I've been temping lately as finding a full time job has proven difficult, although I think I'm physically ready to handle it. Getting back into the world of PEOPLE, people who know nothing of my ostomy, has made something painfully frightening.....

How does one contain the 'smell' that comes from the ostomy when emptying?? I mean I've heard hydrogen peroxide, mouthwash, drops.... most of which I've tried. And they've worked but somehow taking a bottle of hydrogen peroxide with me into the bathroom every time I go isn't appealing - especially when the whole office can see me headed there. I'm already mildly paranoid about how often I use the restroom.... And now I'm worried if someone comes in there to use the other stall ----------- gah! I'd feel mortified, even if no one said anything. So how do those of you who are out and working deal with this?

On another note: it's been dreadfully cold here in Florida. Generally I'm more comfortable in skirts and dresses because of where my ostomy sits. Still not completely comfortable in pants. So I've been wearing black leggings.... the kind that go up over my waist... in place of nylons. So..... (thank god we can be open here) my bag sits on the part of my leg that connects to my hip when I'm sitting down. When anything comes out I feel..... damp. I'm not, thankfully, I think it's just from the warmth, but I can't get over the paranoia that I'm going to have an accident at work. I have my supply bag with me just in case, but then we come back to problem one - THE SMELL. I can't imagine trying to change my appliance at work......

Any hints, suggestions, ideas.... anything. I want to work right now and these little things are making me scared to.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/28/2010 7:27 PM (GMT -6)   
I have found that if I eat activia yogurt everyday that I have NO odor whatsoever. If I don't eat activia, then I use m9 drops, which I order through my supplier. I have a small bottle that fits in my purse and a bigger bottle that I keep in my bathroom at home. When I use m9 drops, the smell is totally eliminated too. I have found that pretzels make my output stink to high heaven, EWWWW, so have decided to eliminate them from my diet.

I feel that wet feeling too sometimes. I have chalked it up to sweat and the warmth of the output also.

What system are you using now? I have been alternating between Convatec and Hollister, but prefer Convatecs moldable wafer because it is very gentle on my stoma. I still have not gotten the hang of the eakin seals though??? Have you?

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 12/28/2010 7:35 PM (GMT -6)   
     Try eating wintergreen mints.  One time, when I was using the Hollister bags...now have switched to Coloplast, the bag broke while my husband and I were attending a Comedy Club Show at the Borgata Casino in Atlantic City.  I wasn't aware that the bag had split.  When I went to the ladies room after the show...wow, was I in for a surprise..doo doo all over the place BUT I had eaten quite a few wintergreen mints before the show and the output actually smelled GOOD...minty like tongue .
     By the way, I have never had an accident with the one piece Coloplast bags yeah .

bearbear3
Regular Member


Date Joined Nov 2010
Total Posts : 61
   Posted 12/28/2010 7:37 PM (GMT -6)   
The Convatec style that worked best for me was the one piece Active Life system. I am very active and because my stoma is ON my waist line directly across from my belly button the moldable systems weren't working for me. They were too stiff. I have fallen in love with the Hollister two piece system - with ostomy belt! I don't know if it really helps but it makes me feel more comfortable so it's good for me. The one piece Hollister system is nice too. I have samples from Coloplast and Marlen coming as I'm always open to something better.

As for the seals, I do prefer the Hollister Adapt seals. They come off cleaner and don't leave a sticky residue. But I have more Eakin seals than the Adapt so when I DO use them I cut them in half and mold it around my stoma. That seems to work well for me. Also, it seems that the longer I keep it on the easier it comes off. But that's just my experience.

I should mention I know about the M9 drops but I don't have insurance right now - which is why I've gone for the mouthwash and peroxide in the past. I suppose I could get a small bottle and fill that to carry with me.... I will try the Activia though. That seems MUCH easier!
Misdiagnosed with UC 2004. Diagnosed with CD 2009. Partial, temporary ileostomy Sept 2010.
Other Dx's: GAD, Severe Mood Instability, Arthritis
Pentasa
Buspar
Lamictal
B12
Benadryl
Tylenol
Immodium

CorgiMama
Regular Member


Date Joined May 2010
Total Posts : 26
   Posted 12/28/2010 7:40 PM (GMT -6)   
 
well I can relate to the work place situation.  Luckily though there is one bathroom that is further away from our main area and i often use that (it also has a good exhaust fan ;)  I'll use the drops sometimes (Coloplast O.A.D. works well).  I've also noticed that when i take my iron supplement it decreases the odor and makes my output real dark too.  I just got some deoderant tabs to put in the pouch today I'll have to see how those compare. 
I think it is Hollister that makes little packets of lubricating deoderant.  That would be easy to sneak into the bathroom with  you.
Hang in there!
Best of luck
 

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/28/2010 10:49 PM (GMT -6)   
i was going to suggest the little packets from hollister, i keep some in my pocketbook and if im out i can use those if i need to. they dont work as well as the m9 but they do pretty good. but they are kind of icky so be careful and dont get it on your clothes! the first time i used one in a public bathroom i opened it then had to put it somewhere while i picked the bag up and opened the tail, well i put it on my leg, but it dripped into my underwear! yuck!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/29/2010 7:21 AM (GMT -6)   
put a can of deodorizer in the bathroom or even in the stall...when you empty spray some into the toilet and empty. There will be very little smell:), if any!!

I purchased a little can at Walmart or Target that I keep in my purse for when I have to empty when I'm out. You could also carry a little spray thing of Binanca mouth spray and do the same thing.

Have you tried a shorter pouch? I flip the tail up under the cover and put it into my underwear...no pokes!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1251
   Posted 12/29/2010 11:44 AM (GMT -6)   
We have a tiny loo just off our tiny kitchen/come hearing aid repair room at work. I use 3% hydrogen peroxide (no stronger! - it's available in the first aid section of your supermarket and is fine as a mouth wash and so won't hurt your stoma). Just a few drops into your bag each time you empty and there is NO odour (no coverup, just no odour) at all. I love it.

We have a tiny cupboard (to go in the tiny loo) where I keep my HP and all the audiologists know about about my ileo so it's not a drama - a couple even have CD so I can assure them life goes on if an ileo is in their future. When I cover at other clinics, I just put some of the HP into a small squirt bottle and carry it with me to the loo (however most of the auds at other clinics know about my ileo too 'cos I'm into 'educating' lol.)
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

WeirdBeard
Regular Member


Date Joined Aug 2008
Total Posts : 123
   Posted 12/30/2010 8:12 AM (GMT -6)   
Halls Mentho-Lyptus cough drops. They work better than the packets from Hollister and you can easily put them in your pocket.

Also, you might consider chlorophyll supplements - they deodorize from the inside, so to speak.

I use M9 when at home and the cough drops when I am out and about.
51 - male - in North Carolina near Asheville
UC is GONE!! Permanent ilieostomy on July 8th, 2010.
Stoma is named "Sparky".

MACGIRL
Regular Member


Date Joined Jul 2009
Total Posts : 90
   Posted 12/30/2010 4:43 PM (GMT -6)   
Christine,

This may sound stupid but are the wintergreen mints you eat the candy mints or actually mint leaves?

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 1/1/2011 9:41 PM (GMT -6)   
None of the drops worked for me and I was trying everything under the sun. Then my ET nurse told me to try Ostofresh. That was the best thing she ever did for me :)
I got a sample from her and since then, NO SMELL, and I carry a small bottle of it in my back pocket when I go to the bathroom to empty. If I'm out and about, it's small enough to fit in my wife's purse (finally found good use for it LOL!!!! J/K).

Ostofresh ... ask for a sample and then ask your supplier for it to be covered under your insurance, mine is thank God!

Let me know how it goes...

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/2/2011 8:07 PM (GMT -6)   
I have one question that's related to this...

I use Hollister velcro closure pouches, and I have a hard time opening the bottom to put any drops in there. It's like the two sides just stick together. Any suggestions?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/2/2011 9:03 PM (GMT -6)   
i put tape on the plastic parts, not the velcro and not the outside. if you roll the bag up and close it, i put tape on what is showing then
makes the bag way easier to open
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 1/2/2011 10:05 PM (GMT -6)   
Steph,

When I was wearing Hollister I had the same problem. My ET nurse is a genius! She told me to fold the velcro part of the bag in half, and make a crease in it both ways and then when you go to empty or to put drops in it, squeeze the middle and the bag opens up!! :)

Let me know if you want me to talk you thru it .... glad to help anytime.

bearbear3
Regular Member


Date Joined Nov 2010
Total Posts : 61
   Posted 1/3/2011 6:48 AM (GMT -6)   
ucfree and summerstorm

I am having the same problem but I have Hollisters new velcro pouch.... it folds and theres just one velcro piece that folds over. It is hard to open and I end up using tp and my fingers to pry it open. Not the most sanitary method but it works. I'd love to have an easier way but its hard to envision what you're saying. Can you elaborate at all? Thank you!!!!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 1/3/2011 9:47 AM (GMT -6)   
The Hollister was perfect, it has a working filter and everything. I switched to Coloplast because of how hard it is to empty and clean the ends :(
So what I did witht he Hollister bags was I took the end of it and folded it in half so there is a crease in the actual velcro piece. So when you open the end of the bag it opens up like a square .. makes sense?
If not then I'll go home do it and post some pictures on how I did it .. I should have some hollisters still laying around somewhere ....

let me know !

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/4/2011 6:03 PM (GMT -6)   
ok its kind of hard to explain what i mean but i will try. Before you put your bag on, close the tail up. then what is showing, the plastic that is showing still, put medical tape on that, it takes me three pieces of the narrow. I put one where the pouchfabric meets the plastic, then another across the crease, folding it there, then another starts below that. I run them to the edges and make sure they dont go over the edge or else i wouldnt be able to open it! also, the more times you open and close the bag the easier it is, so i usually open and close mine a few times before i even put it on. i do that while im getting all my boxes ready to go.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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