Appointment with Surgeon, update

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/29/2010 11:18 AM (GMT -6)   
On Monday I was sick with horrible cramps ALL DAY long. It felt like labor pains. Luckily I had an appointment with my surgeon yesterday for a check up. He said he was pretty sure I had a partial blockage in my parastomal hernia. He also said I did the right thing by taking the bag off, getting into a warm bath, and massaging the area.

We decided that I will have another surgery in May. He will remove the rest of my colon, repair the hernia, and make me an end ileostomy. I will keep my rectum since it is disease free. I will also have a plastic surgeon in for the surgery to perform a tummy tuck so I can have my stoma placed lower on my abdomen. Right now, it is right in my belt line and i can not wear any of my jeans.

Where is the best spot to have the stoma placed anyway???? Just curious because I forgot to ask him yesterday.

I am still smoke-free, walking 3 to 4 miles a day, and feeling awesome. My weight is still heavier than I would like by 7 pounds, but I figure I will lose it eventually. Everybody that sees me says I look so much healthier and not so sickly and gaunt.

I can still sleep laying down, my nausea is reduced by 75%, and my heartburn seems to be a thing of the past. It takes me 2 minutes to empty my bag and I am on my way again. :)

As far as the partial blockage, yes, it was terrible and ruined my entire day, BUT, with my pesky colon in play, I felt sick every single day. I still have some skin issues, but they are getting to be less and less the more I learn.

My doctor told me that the end ileostomy will be much easier to care for than the loop that I have now.

I hope everyone had a Merry Christmas and has a Happy New Year!

Tracy

66 mustang guy
New Member


Date Joined Nov 2010
Total Posts : 17
   Posted 12/29/2010 4:53 PM (GMT -6)   
I would say just below the belly button although when the nurse was asked by the surgeon to mark three locations on me for my ostomy she marked one below my navel, one above it and one on the left side, I asked the surgeon to use the lowest one on my right side if he could, well when I woke up the ostomy was on the high mark above my navel, I don't know why he used the one so high it interferes with my waist enough that I have to wear suspenders, there must have been a reason for it I will ask him next week.
Crohns since 1984
Three resections then colostomy in 1988
Another resection in 1992
Crohns came back after eighteen years with a fury in Feb. 2010
End result was a ileo Oct. 31

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 12/29/2010 6:32 PM (GMT -6)   
Tracy,

WOW, I sure hope I don't ever get a peristomal hernia. Did your surgeon say what caused yours?

Sorry you have to have more surgery, but there is a plan in place. Why is he removing your colon? Doesn't it hold small intestine in place?

May seems a long time off, but time will likely fly by. Hope you don't get any more blockages. I know I had 2 on mashed potato and have not eaten that since. I did have the CT Enterography which showed no issues but nothing is fool proof as we know. I seem to have to not get my effluent too thick to be comfortable. Also by every night it feels heavy between my naval and my stoma, but there is no bulge and all moves along OK. There is some fat but that is because I gained 35 lbs since my surgery, but I needed to as I was down to 99. So I don't know what is up, but it's been this way a few years now and my surgeon says no hernia or any other structural issue.

My end ileo is 2 inches diagonally down from my naval on my right side. I don't wear jeans or tight fitting pants. I go for the draw string type and actually fold over the tops of pants and shorts so the band come under the stoma, then I wear my blouse or shirt out. I don't want to take any chances on anything even touching my stoma after all I went through.

In Rio I took a sightseeing helicopter ride and they loaded us in sooo fast then they buckled us in with tight seat belts so fast that thank God I had time to cup my right hand over my stoma so that the seat belt went out around my right hand. The ride was only 10 minutes so I just left my right hand cupped there; I did not even have time to loosen the belt. BUT, had I not been quick with my hand, I would have had my stoma either squished or cut right off me by the belt. That could have been a disastrous ride for me.

Rosemary

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 12/30/2010 6:06 AM (GMT -6)   
Tracy,

good to hear from you. so sorry about the blockage.. i hope you can hold on till May and not have more probs with blockages. although another surgery is a bummer, i am glad your surgeon is going to repair the hernia and i'm also so happy for you that you'll get an end ileostomy. it's so much better than the loop one.

so proud of you for still being smoke free! maybe i'll be able to quit too some day...

it's so good to hear you're doing well and feel so much better since the surgery and i wish you all the best there is in the world and everything continues to go wonderfully for you! :) :) :)

Rosemary, glad you made it through that ride!!! hope you stay well and enjoy the rest of your trip! love you guys!!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/30/2010 9:46 AM (GMT -6)   
Rosemary, my doctor told me that I will have to have a mucous hole if I decide to keep my colon because he worries about a mucous perforation of the colon???? So, in order for me to have an end ileostomy, he will have to remove the rest of the colon. Have you ever heard of this? Maybe Peltzier has????

I told him I don't produce much mucous and he said this is because the mucous backs up and comes out of my stoma. And I believe this because many times when I am changing my system, I noticed clear liquid dripping out of my stoma. I think this mucous sometimes drips under the wafer and causes irritation. YUCK

This is one of the many reasons that he said the end ileostomy is easier to take care of.

Hodaya, how are you doing? Call me if you feel like it. I am home from work until Tuesday.

Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/30/2010 9:50 AM (GMT -6)   
Oh yeah Rosemary, I forgot to tell you that the doctor said a parastomal hernia is much more common with temporary loop ileostomies than end ileostomies because the loop is much bigger than the end. Mine looks real small, but the rest of it is under my skin.

I have a temporary closed loop ileostomy.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 12/30/2010 6:25 PM (GMT -6)   

Hi Tracy,

Am sure glad my surgeon from Lahey did an end ileostomy right off the bat.  It was actually my suggestion.  He was going to do a loop and said that stool can sometimes go down the other loop and get into the colon (mine being almost scarred shut that would not be a happy thing).  So I said, Why not just go right to the end ileo and skip all the chance for complications.  And that is what he did.  Thank heavens.

If yours is a loop ileo....I see there is still some connection between your colon and your small intestine so the colon mucous could back up and come out of your small intestine loop ileo.  That would be a lot of mucous but I see what you are saying.

Double glad I got the end ileo if loops are more apt to prolapse.  Too bad you didn't just get an end one right off too.  I guess your doc had hopes for your rectum working again (and we both guessed it would not) and loops are easier to take down than end ileo's.  He sounds like a careful surgeon, so am sure your revision will go well, but each surgery begets more scarring internally.  I am totally praying I never need any more surgery of ANY kind as I don't think my body could take it.

Thanks for the clarification.   Rosemary


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 12/31/2010 5:06 PM (GMT -6)   
     Hi Tracy!  Happy New Year to you and your family.  Proud of you girl for sticking with the non smoking yeah
     My stoma is to the left of my belly button, about an inch or two over and about an inch down.  I can't wear the two pairs of hip hugger jeans I bought about a year before my operation...oh well.
     How does it feel when you have a blockage?  Painfull?  You wouldn't believe what my stoma has spit out.  When I was hospitalized for dehydration back in July, they gave me these huge potassium pills.  This wasn't the same hospital where I had my surgery but they were aware I had a stoma.  Anyway the pills came out whole in my bag.  Holy crap, they were the size of a nickel!  Whew, was I ever lucky huh?
     Right now I am getting over the flu bug.  I didn't have the shot but I think maybe next year I will because I don't ever want to feel this yukky again.  Luckily I am off all the immuno-suppressants I took while I suffered with UP.
     Your doctor is correct.  An end ileo isn't bad at all.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 12:27 AM (GMT -6)
There are a total of 2,974,897 posts in 326,220 threads.
View Active Threads


Who's Online
This forum has 161311 registered members. Please welcome our newest member, cannhub.
289 Guest(s), 1 Registered Member(s) are currently online.  Details
BOB 46