liquid retention

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New Member

Date Joined Oct 2010
Total Posts : 19
   Posted 1/1/2011 4:35 PM (GMT -6)   
hello again and happy new year everybody, another question/problem for you, although I'm drinking plenty during the day, over 2 litres a day I dont seem to be urinating during the day, I go during the night, the lot of it comes out ( well about 1.5). Is this normal or does anyone know why this is?

I finished my course of steroids on Tuesday and since then haven't been able to eat much, i get that full heavy feeling after a few mouth fulls. I think that could be because of all the liquid sitting somewhere in there. Ive also felt the usual weakness tiredness and general crappyness of finishing steroids, came down faster then usual as well due to my UC not being there anymore. 3 day 5mg prednisolone drop instead of 7 days.

I had a loop ileostomy on the 9th December after about 2 months of a bad flare and 3 weeks in hospital, 2 for UC 1/2 at home then 1 pre operation, was too weak and immune system was non existent, started infliximab when i was in hospital for UC.

Had been grand while I was on the steroids, getting better more energy, more active etc then wham!! Anyway just looking for any help really have had mucous and bile coming out of my bag and entered the new year changing my seal which had sprung a little leak, have taken immodium 3 times today and will take another going to bed (twice other days since hospital), haven't had a thick motion since one on Wednesday although does feel thick in the bag now when i press it, so there is some hope for me.

Sorry forgot to mention i also have a yeast infection in my throat that i managed to pick up in hospital,am on mycostatin 1 ml drops 4 times daily for it and it has cleared up a good bit since hospital although is quite sore today.

Post Edited (garanmoldu) : 1/1/2011 3:14:04 PM (GMT-7)

Veteran Member

Date Joined Dec 2008
Total Posts : 1325
   Posted 1/1/2011 8:26 PM (GMT -6)   
EWWWW, I got thrush in my mouth too after my surgery. YUCK. My doctor gave me DIFLUCAN! It is a pill versus the liquid and it worked very well. If you don't see much improvement soon, ask your doctor for the diflucan.

As far as the liquids. I am not sure what is happening, but I would be sure to ask your doctor. Do you go many hours at night without drinking? Maybe you are getting too dehydrated during the night?

Good Luck, Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

Veteran Member

Date Joined Feb 2010
Total Posts : 720
   Posted 1/2/2011 12:41 PM (GMT -6)   
My output was liquid for a while too. Around week 6 I asked my surgeon about it because I was tired of my pouch filling up so fast. He recommended Imodium. The funny thing is, the next day it stopped being so liquidy, so I haven't had to try the Imodium yet. I am at week 8 now and haven't had the problem again. My stoma nurse also said recommended a small amount of Metamucil with meals, and I have had luck with this if I know I am going to eat something that tends to give me more liquid-type output. I would check with your own nurse or doctor about adding this though since a loop ileostomy may have different issues than an end one, which is what I have.

I don't urinate as much as I used to either, and I have been drinking 3 quarts a day. In the morning I used to have to pee like crazy after drinking the smallest amount, now I don't. I do definitely go though, so if you aren't urinating at all during the day, I would check with your doc... especially if your output is mainly liquid. You can lose a lot of water that way. My surgeon told me two quarts wasn't enough and to aim for three. And that is not when I am active either. It is going to be crazy when I am backpacking and climbing. I am going to have to carry a gallon of water!

I got oral thrush as well. I seem to get it every time I go to the hospital. I took Nystatin oral suspension and it cleared up, but took a while.

I had really bad Prednisone withdrawl too. Like you, my appetite was great after surgery while I was still tapering off Prednisone. Then when I got to about 5 mg, I started to feel really awful. Nothing dangerous, but I completely lost my appetite, was insanely tired and got hot flashes and chills. Lasted about a week. I remember it took me about an hour to eat an egg and I felt nauseated the whole time. Around week 7 I finally got my appetite back. It is so good to feel hungry again. Prednisone sucks and I am really glad that I will likely never have to take it again.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

New Member

Date Joined Oct 2010
Total Posts : 19
   Posted 1/3/2011 9:45 AM (GMT -6)   
blueheron Thanks again for the info/support yeah it has started to harden up again a bit and i am able to eat a little bit, dont quite have any sort of appetite but know i have to eat so make myself eat a little bit at a time. Will ask them at my next appointment which is soon enough.

Yeah im starting to go again a bit in the day so I think it might have just been my body's immediate reaction to finishing prednisolone mixed with not drinking as much due to feeling terrible. Still have noticed its not as much as it used to be, and yeah hiking and climbing are going to be crazy with water, but we will survive :)

It is annoying how long it takes to eat things, a bit fuuny though, my parents keepp asking me if i want things hot or cold and all i can really respond with with is that it doesnt make a difference it will be cold before Im partway through. Im also on a nycostatin oral suspension and it does seem to be working, thought it was even gone before I finished the preednisolone but got a bit worse after that or else i just feel it more, still clearing up though :)

I know its great to be finished with the prednisolone, I remember I used to think they were great the first time I took them in 06, fixed my prob and made me feel great and I didnt really notice any withdrawal, oh how that has changed...
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