I mean SERIOUSLY, when is enough enough??? :(

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80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 1/4/2011 10:06 PM (GMT -6)   
Hi everyone,
I've been having a stubborn yeast infection under my wafer for about 3 months now. I have tried just about everything.
 
I've suddenly gone from an annoying yeast infection to a full blown gooey mess in just a few days. A week ago it seemed to spread to my belly button but was manageable under the wafer. I've been trying coloplast (instead of Hollister) lately, and after just a day of wearing it, a huge red spot appeared over my stoma, and it's weepy. :(
 
I've been spending about an hour every other day with my pouch off, but that's really all I've had time for. I'm putting nystatin powder on between every change with barrier wipes over the top. My dr has prescribed diflucan for 5 days twice, but refuses to give me any more. I've used Kenalog spray with not much reaction once, but I"m going to try it again tonight. I'm cutting my wafer as much as I can to give the really red areas some air. I sleep with no shorts on so the area can breathe as much as possible.
 
I'm getting really scared that soon I'm going to be house-bound because of not being able to wear a pouch. I'm going to be devastated if I have to lose the wonderful job I've waited so long for. I feel like I'm doing everything possible and I'm so frustrated. I have heard of people needing as much as 14 days of high does diflucan but I don't think my dr will give it to me. If I miss any more days of work I'm going to be penalized.
 
I don't know what to do. I just spent the last 2 hours sitting on my couch with towels and TP all around me. This is misery.
 
Please, ANY ideas would be great. I just can't seem to catch a break.
 
Thanks guys, and happy new year. :)
Stephanie
 

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/4/2011 10:24 PM (GMT -6)   
What about a steroid?
(TMI alert!)-I'm sharing this in the interest of helping you.
Ahem.
I once had a very bad yeast infection.....elsewhere....that wouldn't clear up without a steroid. Needless to say, it helped.

And I know in animals that we often prescribe pred when treating bad yeast infections.

I don't know what kenalog spray is, it sounds like a topical steroid, but maybe an oral one would help even more.
Chassity
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 1/4/2011 10:34 PM (GMT -6)   
Yes, Chas, Kenalog is a steroid. I sprayed a bunch on there tonight before putting on my wafer and hopefully it'll help. As for the pred, I have some left over from my Crohn's days...I could try it. Do you think a 30-25-20....6 day taper would work? How much did you take?

I LOATHE pred but I'm willing to try ANYTHING.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/4/2011 10:48 PM (GMT -6)   
Well, ummmmm, my steroid was topical too........... It took about a week to clear up.

So, I know you are desperate, and want relief now, but I think you should ask your Dr. about the dosing of pred. I wouldn't want to cause anything worse, if he doesn't think it's a good idea.

I think we all have some pred. in our medicine cabinet left.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/4/2011 11:09 PM (GMT -6)   
i dont think i have ever taken pred for a yeast infection (and i tossed ALL mine, first thing i did) but i did notice that when i would get thrush, i could eat fresh pineapple and it would go away. i guess the huge amount of acid in it. thats kind of an out there suggestion, oh and there is something that women put ontheir breasts for thrush, my mom bought it for my sister at the store, i cant remember the name, but i will find out tomorrow, or you could try just searching for it, good luck!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/5/2011 6:31 AM (GMT -6)   
But aren't we supposed to not eat pineapple?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/5/2011 8:10 AM (GMT -6)   
Is the doctor that will only do 5 days of Diflucan your Surgeon or GI?

Would your family doc give you a two week prescription? Do you need to find another doc?

There was a point in my early ostomy days that I was actually on about a 45 day course of Diflucan. My C/R Surgeon wrote the script. I had to be on a crazy amount of antibiotics and he gave me that one at the same time...it was for the other kind of yeast infection but STILL your doc isn't helping the problem by not writing a bigger script mad

My last suggestion: Do you have one of those 'old fashioned' pharmacies? I have one that caters to the older population and has medical equipment AND ostomy supplies on the shelf (a gem I just discovered getting crutches for my daughter)...if you do, maybe the pharmacist could shed some light on something since they've actually got a better handle on drugs than even our docs!

I am so sad that you are dealing with all of this...we go through our surgeries to GET PASSED all this junk...I know once you get a handle on this everything will improve. Hang in there (((HUGS)))
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 1/5/2011 8:21 AM (GMT -6)   
Get to a wound care center asap. They have a doctor there that is familiar with skin issues and will prescribe diflucan if it is indeed a yeast rash. I will post more when I get home. hi

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/5/2011 10:07 AM (GMT -6)   
i eat pineapple i just spit the stringy stuff out
i thought of something else too, there is this stuff called nu-skin its like a liquid bandaid it might help, or this stuff called cur-a-sor its mainly for fever blisters but i have used it on sores and stuff on my hands, but fair warning it will hurt, badly! but it does clear a sore up quickly.
but i think a wound care dr is a good idea
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 1/5/2011 10:41 AM (GMT -6)   
Okay, here is some advice I have gotten from others and I think they may help you.

One lady told me to use Gentian Violet for yeast. She said she had horrible problems with yeast infections until she tried this. She said she uses it every pouch change. Yes, it does paint the skin purple, but she said she absolutely has no more issues with yeast....she said we can buy it in any drug store.

On a post from another forum, many said that they use calamine lotion all around the stoma. They stated they coat a cotton ball with calamine and rub it all around the skin and around the stoma and then let it dry, they then proceed to put the wafer on.

I have not yet tried either of these, but will if my skin gets out of whack again.

I truly think your 1st step is to go to a wound care center so that you can see a stoma nurse and a doctor that deals with stoma skin issues every single day. You need some direction and maybe some meds to get your skin healed up ASAP. Remember, having a stoma is essentially an open wound and weepy, irritated skin is not a good thing. It was the doctor at the wound care center that gave me 14 days of diflucan.

I am so sorry you are having such issues and I know how you feel. When it was real hot out and I went back to work, my skin was a wreck with yeast. It seems to have calmed down with cooler weather though.

Also have you tried coloplast's skin barrier sheets under your wafer? I read many have had good luck with these.Have you tried placing an eakin seal all the way around the wafer to see if this will help your skin heal?

There is a solution for you...keep searching!

Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 1/5/2011 4:09 PM (GMT -6)   
Have you tried OTC jock itch/ athlete's foot cream (or spray)?

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/5/2011 8:22 PM (GMT -6)   
Hi all!
Thank you so much for your ideas. I went in to see a friend's friend's nurse/practicioner who used to be an ostomy nurse and she prescribed 3 weeks of diflucan, and will continue to see me if it doesn't improve. I have hope again, and all of your ideas sound great too. THANK YOU ALL.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/5/2011 9:27 PM (GMT -6)   
I'm glad that you found a medical professional who could help you out so quickly and pray that it clears it up for good! (((HUGS)))

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/5/2011 10:21 PM (GMT -6)   
Me too! This was one of the best medical experiences I've had! It was so quick and painless!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 1/5/2011 11:21 PM (GMT -6)   
I think you should get to a wound care clinic. You need to deal with a doc whose expertise is in wound healing.

If this is truly a yeast infection it could be that it is now resistant to the antifungal that you are using. Nystatin ( miconazole) and Diflucan (fluconazole) are pretty much the same thing. There are other antifungals that can be used instead. The docs always, however, start out with miconazole or fluconazole and only move on to the other drugs when necessary.

Also, normally, steroids are not used to clear up a fungal infection. They can actually make it much worse.
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 1/9/2011 12:18 AM (GMT -6)   
Just wondering how you are doing?
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

comitoex
Regular Member


Date Joined Jan 2011
Total Posts : 23
   Posted 1/9/2011 3:36 AM (GMT -6)   
I'm glad you asked this question I'm going thru the same thing and it sucks. I have to wear a tie and tuck in my shirt at work so I'm not having a good time. Thank you to all for the ideas I see my doc on monday and I'll talk to him about them.
thanks again
diagnosed w/ crohn's 1995 , hospitalized 1999 blood loss 8 units recieved, perferated illuim 2000 Illostomy as a result. May 2010 to June 2010 emergency surgery for 3 hernias 1 pinched and blocking. Then another blockage then infection yes 3 surgeries. From then hospitalized for 4 times for blockages, infections and kidney stones. been on many meds and waiting for another hernia surgery.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/9/2011 10:17 AM (GMT -6)   
I'm doing ok. I got scared when you said I need to go to a wound care center because I was finally feeling hopeful. I contacted my wocn and she said a wound care center would probably just refer me to a wocn because they have experience with ostomies.

I've been on my diflucan for 4 days now and I've noticed a marked improvement. It's not 100% better yet, but of course I was pretty bad off 4 days ago. It's dealable now. Thank God. I hope this will continue.

I also have an ostomy support group meeting today so I will talk to my wocn there as well.

Thanks for checking on me!

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 1/9/2011 10:59 AM (GMT -6)   
80'2chick, that is wonderful news that you are seeing marked improvement. How is the itching and the weeping?

As far as a wound care center....they have stoma nurses at the wound care centers too because they go and see new ostomates that are in the hospital! Call your nearest hospital and get the number to the wound care center and call and ask. Sometimes it is necessary to see a doctor that deals with parastomal skin everyday to get the medication that we need.

I am going to walmart now because we are expecting snow and ice in the deep south. :( I am going to buy some gentian violet and some calamine to have on hand. Many have sworn the calamine helps with itching which I have struggled with off and on.

Which system are you wearing now? Do you think you are allergic to the products? Or do you think it has been one long yeast infection?

Did you have the surgery to have your intestine tacked down so it couldn't twist and cause an obstruction? If so, how was that? Are you back to work yet?

I am so glad to hear you are doing better. Tracy

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/9/2011 9:57 PM (GMT -6)   
Answers,
I am wearing a two piece convex HOllister with no tape. I found I was allergic to tape about 2 months after I got my ostomy, and now I wear a wafer made of pectin. I have tried MULTIPLE products and this is the only one that doesn't leak or severely irritate my skin. Not many companies have options for people with sensitive skin like mine. I am fairly sure it's yeast as I've seen 3 WOCNs now and they think that, and also every time I'm on diflucan it gets better, and if it were an allergic reaction that would not be the case.

I have not had the last surgery yet. It's the 20th, which is a Thursday. It'll be outpatient and if all is well I think I should be back to work by that Monday. I can't stand to be away from my students so I really hope this can be the end of this. I'm thoroughly sick of all of these complications and ready for a regular life.

Thank you for checking on me :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 1/9/2011 10:42 PM (GMT -6)   
Stephanie
  OMG girl I have a call into my friend to see if I can get some answers for you.  She has had a appliance for over 30 odd years and maybe she knows some tricks..I will get back to ya... So sorry your having such problems..praying for you sweetie...
 
Leslie
 

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 1/10/2011 12:08 PM (GMT -6)   
Since we are so new at this - sorry for your situation - but thankful to read the different suggestions in case we need to deal with this down the road
64 yr old male --suffered with UC & in May 06 severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision in 6/10 to have surgery which was on 12/17/10 and no longer in pain.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/20/2011 9:41 PM (GMT -6)   
I'm not an ostomate yet but I do deal with such infections, and my gynae recommends regularly bathing the area in white vinegar, diluted in water. She says that fungii hate acidity, and the acid can drive it away.

I thought I would mention it, just in case it helps.

I hope the Diflucan does the trick.

Ivy (just passing through)
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 1/21/2011 1:26 AM (GMT -6)   
Athletes foot powder cleared my infection up in about 3 days! try it out...

I'm so sorry for what you're going through, we have enough to deal with without having stupid skin problems.. I went through the same thing for about 2 weeks and it was absolutely horrible... within about an hour of a bag change it'd be peeling up.

Good luck keep us updated!
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!
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