Son having surgery tomorrow...

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Luvfraz
Regular Member


Date Joined Apr 2009
Total Posts : 26
   Posted 1/5/2011 11:32 AM (GMT -6)   
Hi,
My 21 year old son had the first part of the ileostomy surgery last July due to severe and unmanageable U/C. He was having 2 flares a year that each lasted for several months, and always landed him in the hospital. The last one was last May and by July he had to have his colon removed. Well he has gained almost 50 pounds, and looks and feels amazing. He has been wearing the bag since the surgery, and as you can imagine at 21, he is ready to get his life back, find a girlfriend, etc., and does not want to live with the bag forever. He is scheduled this Thursday to have the j-pouch constructed and have the connection completed so that he will be able to get rid of the ostomy bag. My question is to anyone that has been the caretaker, parent, spouse, etc., what should I expect when he gets out of surgery, and is able to come home. The doctor tells us to expect him to be in the hospital at least a week. Any response, help would be appreciated...
I am extremely anxious and worried abou him.... 

samlc25
Regular Member


Date Joined May 2009
Total Posts : 92
   Posted 1/5/2011 12:02 PM (GMT -6)   
Sure thing.  I am 3 months post takedown.  You should expect bm's in the range of 15-20 for a few weeks.  He will probably get butt burn so make sure and apply ointment from the beginning.  The best out there is calmoseptine.  I would find out which store carries it now because I had to order it and wait a couple days.  Also, with the long layoff he will probably have a sore bum for a while.  For me, the transition was much tougher than the first surgery but everyone is different.  Patience is key.  Don't expect to return to normalcy over night.  Measure progress in terms of weeks, not days.  Try to stay as positive as possible because it is very easy to get depressed. 
 
 

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 1/5/2011 2:21 PM (GMT -6)   
I only had my takedown three weeks ago but I can definitely say while the surgery and recovery were pretty easy physically, the adjustment time has been much more difficult than adjusting to life with an ileostomy. You definitely have to be patient and keep expectations low at first. I can't tell you how many people after my takedown told me 'it's finally over' or 'yay, you're done' or my favorite "your back to normal." They are all well-meaning friends and family members but they don't know what recovery entails but that's fine. I've prepared myself for a long road but I know in the end it will be worth it. Things will get better but it will take time.  I didn't have much leakage at all but I did wear ?Poise? pads to bed for the first couple of weeks. I would recommend he keep a squirt bottle with warm water by the toilet because your son will quickly learn that toilet paper is not his friend. I haven't had much problem with butt burn and I ate really bad during the holidays. I just ordered a bidet seat that heats up and shoots warm water on you after you're done with your business - Merry Christmas to me! The thought of wiping 8-10 times a day didn't appeal to me. Right now I still feel urgencies like I had with UC but I can usually hold them off. I think this goes away in time but those feelings remind me how much I hated UC and how thankful I am that I no longer have it. It's very hard to go back to that. Don't worry about your son, he'll be fine. The takedown surgery is fairly simple and since he was able to adapt to an ileostomy he'll be able to adapt to the j-pouch. Also, Walgreens carries calmoseptine. Good luck!

Luvfraz
Regular Member


Date Joined Apr 2009
Total Posts : 26
   Posted 1/5/2011 2:25 PM (GMT -6)   
Thanks so much for the advice Scrapgirl! Where can I purchase one of those bidets...? Sounds like a great idea for him....your reply really helps me be prepared for what is to come in the the  next several weeks for him and for our family.
Thank you again,
 
 

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 1/5/2011 5:05 PM (GMT -6)   
There are lots of websites where you can buy them. I used bidetsplus.com but there's also sanicare.com, bidetking.com and many more. Lots of them price match. Just to let you know, if you want a heated one you have to have an outlet near the toilet or have one added. Let us know how he's doing.
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