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cghopper
Regular Member


Date Joined Nov 2010
Total Posts : 42
   Posted 1/10/2011 11:09 AM (GMT -6)   
I went to work today and my ileostomy leaked.  Again.  My first day back to work from my medical leave was Thrusday and the exact same thing happened.  Was was wearing these same pants so I wonder if maybe they are the cause.  They are not tight, but the buttons hit right over my stoma.  We're having a bad snow storm, so I didn't feel like it would be the best idea to run home and change my clothes (like I did last time).  I didn't get on my outside clothes, but it got my underwear.  I had my supplies with me so I put a new appliance on and patted off my underwear as best I could.  I put a paper towel between my underwear and my pants because they are a little damp.  This really sucks.  I doesn't leak at home.  It waits until I get to work.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 1/10/2011 12:49 PM (GMT -6)   
cghopper
Tell us what you wear, how you put it on, how you clean, where it leaks, is it always the same place, and everything you can think of. Maybe you have told us before, but tell us again. Maybe we can help.

Dan

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 1/10/2011 1:38 PM (GMT -6)   
Maybe for now pants with an elastic waist and tops you can wear outside??? Is the seat belt in the car during your commute to the office putting extra pressure before you even get there?

Or....Do you have a skin crease at all? We are very new at this but hubby uses an Eakin ring with a 2 pc Hollister wafer/bag and before he applies the wafer he takes some adhesive from the tube and at 3 o'clock and 9 o'clock puts some on the wafer to fill in his creases.

I'm sure the more experienced people will chime in here. Sorry you are dealing with this extra anxiety trying to get back in the swing of things.
64 yr old male --suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision in 6/10 to have surgery which was on 12/17/10 (permanent ileostomy - unable to have the j-pouch) and no longer in pain.

cghopper
Regular Member


Date Joined Nov 2010
Total Posts : 42
   Posted 1/10/2011 2:51 PM (GMT -6)   
I use a Hollister two piece with a closed bag.  The flange in pre-cut to 7/8" which is the right size and it is convex.  I also put an extra convex barrier ring on it.  My stoma is round and my stomach doesn't have any creases in it.  When I take it off, I normally just have to do some wiping off just right around my stoma.  The rest comes off clean.  When it leaks it just oozes out all around under the tape in all directions, but of course more in the downward direction.  The one of Thursday I probably didn't get it put together well enough between the flange and the barrier because I was in a hurry.  It looked like it separated and there was fluid between there when I took it off.  I don't know what the deal was today.  I put it on the day before yesterday and really saw no indication it was going to leak.

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 1/10/2011 3:30 PM (GMT -6)   
Next time try wearing your flange without putting the extra barrier ring. Sometimes, an extra ring makes the flange turn away from the skin.

I had the most terrible leak months ago when I put on an Eakin seal before wearing my flange. The flange failed and literally fell out a couple of hours later in my sleep. I never used the Eakin seal again and I have been fine since.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly. Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Previous medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 4/day, Entocort enema, Azathioprine, 6MP

Supplements: Calcium with Vitamin D, Vitamin C, Omega 3, psyllium capsules (Metamucil).

Flared since July 2009. Hospitalized from Nov 22 to Dec 14, 2009. Discharged with Prednisone and Cyclosporine. Hospitalized again on March 15, 2010. Had surgery on March 26, opted for permanent ileostomy and now live a new life.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 1/10/2011 3:50 PM (GMT -6)   
I had to resort to maternity jeans or sweat pants because the same thing happened to me....my jeans with buttons fit me, but they would somehow pull on my bag or wafer and cause leakage. YUCK!
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/10/2011 4:49 PM (GMT -6)   
I have a few pairs of pants I call "standing only" pants. If I sit too long in them the leakage gets down the stoma area and sure enough I will have a problem.

Sure seals help for a little extra protection so I don''t get the leak quite as immediately but it comes. I think it has to do with the pants tight when I sit or something.

Good luck figuring it all out. still working on the ups and downs.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 1/10/2011 5:55 PM (GMT -6)   
     The Hollister leaked on me twice too.  I switched to the one piece Coloplast...Sensura.  They are great!!!  Not one leak ever yeah

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/10/2011 7:42 PM (GMT -6)   
Hollister is the one that leaks the LEAST for me. It's different for everyone because everyone is different.

I use a two piece hollister with convexity too. I just use a flat barrier ring with it; I feel like the convex one does NOT work. I leak with that too.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 1/10/2011 8:03 PM (GMT -6)   
cghopper
Definitely leave the extra ring off. You are just pushing the wafer off.
How do you clean when you are changing? Soap? Water?
Do you use any powders or skin barrier wipes or adhesive removers?

Dan

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/10/2011 8:12 PM (GMT -6)   
CONVEXITY!

and bring an extra pair of undies. I used to do that, until I became more confident with my appliance.
In fact, I used to carry everything with me, everywhere. It's like having a new baby and carrying around a diaper bag.
Chassity
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 1/10/2011 8:34 PM (GMT -6)   
cghopper
You mentioned that you use a closed bag. No drain? How do you empty? A new bag every time you empty?

Dan

cghopper
Regular Member


Date Joined Nov 2010
Total Posts : 42
   Posted 1/10/2011 9:41 PM (GMT -6)   
Yes, I do use a new bag every time. My nurse saw how frustrated I was with the drainable bag because I could never get it clean and as soon as I did there was more stuff in there, so she suggested I do the closed bag. I joke, but I probably do have a touch of OCD. I am on meds. My bag is opeque so I can't see it because it really bothers me. It has really helped a lot switching. I have great insurance so it has covered everything so far. My ileo is temporary so I just ordered the standard "3 month" supply of bags and hopfully it will be reversed in February and I'll have enough bags to last since the closed bags are really for colostomys and they don't use as many. If I do run out, I know it cost more, but it will totally be worth it to me. I'm having enough issues as it is.

When I change my appliance I just whip off around my stoma with warm water. This is how my nurse showed me. If I take it off and shower, I clean it with soap and water. I don't use any stoma powders or anything else. Just the wafer and the extra barrier ring, which is what my nurse determined was best for me. She had me using the elkin seals for a bit and that was much harder to clean off.

For several hours today my stool was coming out almost solid in form. It was wierd. I drink water all day and I don't think I ate anything different that would cause it to do that. It would kind of get caught up in the ring and I'd go in the bathroom and open the top of the bag and shake it down. Then a whole bunch more would come out. It was almost like it was backed up. Does it get backed up? I have been sick with a UTI and have been on Cipro, but it hasn't caused any thing usual from what I can tell and this was the 7th day I was on it.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 1/10/2011 10:20 PM (GMT -6)   
Soap? What kind of soap? All soaps leavea residue that affects adhesion. I use no soap but it has been said that Ivory soap leaves no residue and is best for adhesion.

Dan

cghopper
Regular Member


Date Joined Nov 2010
Total Posts : 42
   Posted 1/10/2011 11:12 PM (GMT -6)   
I'm acutally using what I have left over from what they have me for pre-surgery so it's that liquid antibacterial stuff.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 1/11/2011 10:38 AM (GMT -6)   
pre-surgery........they probably would not be concerned with residue from the soap.......or maybe it leaves an antibacterial residue on purpose. This soap could be your problem. Try changing your wafer without a shower and clean with only water and paper towel. Tear the paper towel into small squares.

Dan

Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 277
   Posted 1/12/2011 8:38 AM (GMT -6)   
I have the answer for you.  There are three wonderful sources of information regarding ostomy care.  First there is Shaz from Australia, then there is the ever articulate Kathy from England and then there is the Evansville Ostomy Newsletter.  Get yourself on their mailing list.  You won't regret it.
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