Allie, thanks for the update on Lizzie. my gosh.. i never thought it would have come to this for her.. a peg tube?? poor girl. i'm so sorry to hear all she's going through and really hope the drs can find a way to finally put an end to her misery. so worried about
Jen, what's going on?? pls let us know as soon as you're able to. hope things work out soon.
Rosemary and Sarah, thank you so much for your support and info. if only i could find a dr to take me seriously. honestly, i don't have much faith i will. but maybe i should just keep the way i am - as long as i manage with the juices etc. i mean it's not so bad, i just have to drink these juices and i'm happy. only if they quit working, then i'll seek help. well if they quit working i'll be so sick they will have to help me. but for now, so far so good.
Sarah, what is a partial resection of the rectum? can that give us relief? how much rectum is left after such a resection? how does it work? i don't know much if anything about this.
BTW, remember i wrote what the surgeon said about my lower hole of the loop ileo shut closed? well today i changed my wafer an i saw again (just like last week) a string of mucous coming out from the lower hole!! so how could he say it is shut closed??? i tell you the dr did look pretty tired that day..... lol. anyway i don't know if it matters and i'm just tired of it all.
again, thank you so much Rosemary and Sarah, your posts made me feel better.
oh Rosemary, i'm just SO THRILLED to have you come here and meet you... you know what, i think you should make it closer to March rather then May, that is if you'll be touring outside a lot, cuz if so, then May may be too hot when touring all day. let me know when it'll be, i can't wait!
oh and thanks for the idea about the salty broth. i'll try it and let you know if it helped.
Jenise, gosh i'm so sorry about all the issues you're still having. i hope something can be done to help you. you've also been struggling way too long.
Sarah, you had a peg tube too? gosh that sounds so scary. you have so much knowlege about all this, unfortunately, from your own experience, something i'll bet you wouldn't want to know about in the first place.