Newbie...changed for first time, questions

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Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 1/12/2011 1:11 PM (GMT -6)   
I was terrified to change it, but I did it. It took me almost an hour, lol, and now I am exhausted.

My question...I have the hollister two piece and the nurses had me use a ring that I cut in half then stretch around then with the other half I cut in half and put at 3 and 9 o'clock. That was the only part I had an issue with. I have a crease next to my belly button so it doesn't go all the way flat and there is a little gap. I put some paste in there and it seems to be holding. So, I don't like using that ring, can I use paste instead so I feel like I have more control? Also, if there willbe a leak will I know it right away? There is output going into the bag and I don't feel any leaks, but I'm a little paranoid about it.

Any feedback would be helpful. FYI, I see the ostomy nurse on Monday.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 456
   Posted 1/12/2011 1:35 PM (GMT -6)   
Im not sure about the ring you are talking about. I use adapt rings and I just stretch it to fit. I've never had a leak using the rings and the wafer with covexivity. I have the same problem with it going over my belly and leaving a gap. So what I do is turn the wafer so that not as much is covering the belly button and then I cut part of the tape so there is not a gap. Its worked pretty well for me.
As far as the leaks ago you may feel a burning/ itching under the wafer. If so you will need to change it
Just be patient. After a while you will get the hang of it and will only take 5-15 minutes at most to change it.

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 1/12/2011 2:05 PM (GMT -6)   
     UGH!  I know what you are talking about.  My ostomy nurse from the hospital had me using the same thing. I found them very tedious.  As time goes on you will find out what type you like best.
     I found the Coloplast one piece much easier.  The Hollister leaked on me twice.  I don't use any rings.  I found that the poop gets under them.  As time goes on, your stoma will shrink a bit in size.  Mine is exactly one inch in diameter.  At first it was 1 1/4 inches and I had to cut to size.  I order the Sensura by Coloplast 1 inch.  It takes me about five to eight minutes to change, although my hubby insists on doing it, but I am quite capable of doing it myself..lol.  I change it about every three or four days.  You can try some samples, just call your distributor...mine is Edgepark or Coloplast directly and ask for some samples.  Edgepark will send you a catalog also if you would like.  Good luck!

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 1/12/2011 4:42 PM (GMT -6)   
Thanks Brian and Christine. I ended having a leak so I followed Holloster's directions and didn't cut the ring, I just formed it around the opening. I just ate dinner so we will see if it holds. I will ask the nurse about this when I go. It would be nice not to use any ring. I think this will take a bit of time to get used to it.

Trigirl
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Date Joined Jan 2006
Total Posts : 768
   Posted 1/13/2011 3:05 AM (GMT -6)   
I find the adapt ring way better endurance wise than the the pastes. I only use one-third of the ring at each change and mould it into a circle and put it around the stoma and then put on the flange. The belts are a great idea too, to keep it tight to the body.

I have been at this 16 months now and still feel new at it. It only takes me 15 minutes to change too. I would say I get a leak once every two weeks still. But that's better than the every other day when I started! I have so many stories. I can laugh at them now but used to cry when they happened.

Not to scare you, just fact.

I say try all kinds of different makes and see which one works the best for you. Sometimes one pieces are very convenient. I like two piece one for changing size of bag and keeping flange on as long as possible.

Good luck with your new adventures in Ostomyland
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/13/2011 5:47 AM (GMT -6)   
I have nowleaked four times and only have 2 wafers left. The nurses said I had plenty and wanted me to meet with them before ordering more. I am so stressed. I got another one on and it held most of the night, but I just woke up and I see the adhesive is dark so it will be seeping out soon. Do now I will have to use another one. I will have to call the nurse and not eat anything, I guess. This is not fun and I am very frustrated because I don't know what. Am doing wrong.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 1/13/2011 7:23 AM (GMT -6)   
Are you using soap? Skin Prep? For some of us those can cause our wafers to life. My WOCN always reminds me to use Skin Prep so to humor them I do...but it doesn't work for me!! Soaps shouldn't have any lotions or junk in them...Dial, Ivory or Neutrogena are good ones.

There are different rings (Adapt vs. Eakin) and they have more wear ability than paste. You'll have to try both...they are not identical and some have better luck with one than the other. I am guessing you have an Adapt from where you had your surgery so you may want to get samples of an Eakin.

Are you putting the pouch on before you apply the wafer? A benefit to the two piece is to see where it is and to make sure it is centered on your stoma.

Have you been warming the wafer and seal? Warming it to body temperature before applying makes a difference.

Last thought...are you showering? Most manufacturers recommend that you wait 24 hours before shower when you've applied a new wafer.

When you get a little further along you'll want to check out Sure Seals...they don't prevent leaks but they do contain them if they happen:)

I hope you've already called your nurse and can get some help today...Hang in there we've all made it through the learning curve and you will too!!!!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 1/13/2011 1:35 PM (GMT -6)   
Disneynutt, hang in there. Those creases can be challenging. I neve felt like I had a realy tight seal around my belly button area but I would move the flange over as far as I could away from that area. Also, I don't know if your flange is oval but I remember the nurse telling me to turn it the opposite direction, which I never would have thought of in a million years. I only had a few minor leaks but you will likely feel or smell something. Once you get the hang of it, it will all become second-nature to you, plus, your takedown will be here before you know it. You're doing great!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/13/2011 3:53 PM (GMT -6)   
i think i had about 10 leaks when i first started changing by myself. It's annoying but normal.
i second all the stuff ohio said. i also use a hair dryer for a few seconds after i put on the wafer and bag.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/14/2011 5:26 PM (GMT -6)   
Thanks. I tried all of your suggestions and I didn't have a leak for about 24 hours. I had my appointment with the nurse today and I told her I had a bunch of tape and gauze pads holding it in place so I wouldn't leak all over, lol. She was very nice and told me she had seen it all.

So, I have a totally different appliance. It is a Marlen and it is curved, something about convex??? My stoma doesn't come out very far at all so this pushes it out. So far so good, although I haven't done it myself yet. It will be nice not to have to worry about it for a few days.

Thanks again, if it hadn't been for all your suggestions I would have had an even harder time.

jules10306
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/15/2011 6:35 PM (GMT -6)   
Disney- I was going to suggest a Marlen bag, but it looks like you got it. I had a ton of trouble with the hollister bags this go round and the Marlens seem to be working pretty well with my stoma...

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/16/2011 9:32 AM (GMT -6)   
Ron--I don't have the 4 inch ring yet so I am supposed to flatten the one inch ring I have now. How should I do that without touching? Maybe with gloves?

Jules...I am glad to hear that you had success with the marlan. I haven't changed it yet myself, but it looked like she just slapped it on me, warmed it and I was ready to go. The one thing she did was put the ring right up to my stoma. I wasn't doing that so maybe that's why I was leaking. She also filled in lots of places with powder, sprayed it with that 3m stuff then repeated. Helped so much with the irritation. So, I am supposed to change on Tuesday. Wish me luck.

jmhis34
New Member


Date Joined Jan 2011
Total Posts : 9
   Posted 1/17/2011 2:23 PM (GMT -6)   
Disneynut
The ET suggested that I try the convex inserts as well - I found that they led to a great deal of leaking. Over the past 7 years I found that the convatec stomahesive paste works best. Typically about the same amount of paste that you would use on your toothbrush. (I too have an indent from an old scar that leaves my area around the stoma off level. The adhesive usually turns dark fairly quickly - it's not a sign of anything, at least in my case, but the adhesive turning dark as it adheres to your skin. I have been using a two piece drainable for many years.
Best of luck
Jim

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/22/2011 5:05 PM (GMT -6)   
Well I think I have finally figured it out. I had leakage again with the Marlan so I will be sending it all back. The one that I have never leaked with is the coloplast convex (I think that's the name). I don't use any ring or paste. I clean, use some powder, spray with 3M spray, repeat then just put on the one piece. It really sticks because the whole seal is made of rubber. No real adhesive tape. My only issue is it still feels a little heavy and awkward, but I am just so happy I have had success and I'm not leaking.

Thanks so much for your help.

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 1/24/2011 9:43 PM (GMT -6)   
that heavy awkward feeling dissipates over time. I felt my appliance very very much so for the first 2 months. I felt like I needed to hold onto the wafer it was so heavy! But once all the muscles had adapted and healed i couldn't feel it any more. Glad you found a system that works for you!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery TBD (hopefully in January!)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/24/2011 9:53 PM (GMT -6)   
if you tape the top to your skin and tuck the bag up into your undies it will take care of the heavy akward thing
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/25/2011 8:33 AM (GMT -6)   
Thanks for all the encouragement. I feel like such a loser. I thought I had it figured out, then I leaked again. I tried the marlan again with the 4 inch ring and it has held since Sunday. It was just so depressing because on Sunday I changed it and was ready to go out with my husband and I felt my brand new pants and felt a leak. I told him to go out without me and I stayed home and tried to figure out what I did wrong all the while my output being constant. I am amazed I was able to get it on and it has stayed on without leaks for a couple days. I had a bit of a pity party and cried a lot. It seemed to hold so I was able to go out later. I think I will change it again tomorrow so hopefully I can make it work again.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/25/2011 9:10 AM (GMT -6)   
Oh, I remember those days! The temp ileo is really hard to manage, it's not you! I encourage you to lean on your ET nurse and keep bugging them until they find a system that works for you! That's their job and they are the experts in ostomy care. Also, something that really helped me with skin conditions was to put Mylanta around the stoma. Let it dry and then attach your wafer. It really helped protect the skin.

Sue

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/25/2011 8:26 PM (GMT -6)   
Disneynut66~YOU are NOT a loser...hang in there.

Definitely call your ET/WOC Nurse. It is certainly trial and error and everything is still new for you. Hang in there!!!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/26/2011 2:47 PM (GMT -6)   
Well, I am happy the Marlan has lasted since Sunday.  I am going to change tomorrow, so we'll see how it goes.  It should go better than on Sunday because on Sunday it was an emergency to change and output kept coming out while I was trying to change it.  Not fun.  Tomorrow I will do it first thing so there won't be any output.
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