Anyone on medication for osteoporosis?

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Christine1946
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   Posted 1/14/2011 10:53 AM (GMT -6)   
     I had an MRI yesterday of the thoracic spine because of constant back pain.  I suffered a compressed fracture of the lumbar spine in 04.  Also I have osteoporosis thanks to prednisone.  The MRI showed another fracture and I have an appointment with my family physician on Monday.
     I realize most of you in this forum are young people but do any of you take medication for osteopenia?  I cannot take Fosamax or Actonel as they both gave me terrible indigestion.  I suppose Boniva is my only option.
     Geez, I was hoping I would be a lot healthier following my total colectomy with end ileo in June.  Should have had that operation before depending on all that prednisone sad .

suebear
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   Posted 1/14/2011 11:10 AM (GMT -6)   
Christine,
I would never take any of the bone building drugs, they have a history of causing terrible damage to the jawbone. More and more doctors are turning away from prescribing these drugs unless it's the benefit outweighs the risk. I would talk to your doctor about other ways of increasing bone density including increasing your weight bearing exercise and intake of calcium.

Sue

Christine1946
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   Posted 1/14/2011 12:02 PM (GMT -6)   
     Thanks Sue, my thoughts exactly!  My friend works for a dentist and he refuses to do dental work on patients who are on these bone density drugs until they are off them for at least two months.  I also noticed there is a class action lawsuit against the manufacturers of Boniva and Actonel because of cases of fractures to the pelvis.   I believe these drug manufacturers offer kick backs to the doctors who push them.    My doctor is in a practice where there are four other MD's, two nurse practioners, two physician assistants and two DO's...and they ALL push these bone building drugs.  I have had osteoporosis for at least four years.  However, I am waiting for the results of my dexascan which I had on Tuesday.  If the results are the same as they were two years ago...then I will be happy.  Maybe the calcium with D that I take will help things improve. 

suebear
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   Posted 1/14/2011 4:45 PM (GMT -6)   
My 86 year old mother's doctor will not prescribe these drugs to her patients! If you have a doctor who is pushing them and not listening to your reason for wanting to avoid them, I'd change doctors. Many osteopenia patients have reported an increase in bone density without the drugs by increasing weight bearing exercise and adding calcium. My GI told me that the only reason why I never lost bone density during my 2 year stint with prednisone, was because of my commitment to weight bearing exercise. I cannot stress enough the importance of weight bearing exercise, especially for women.

Sue

80sChick
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Date Joined Oct 2009
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   Posted 1/14/2011 11:25 PM (GMT -6)   
I have osteopenia due to prednisone and am on calcium only.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Christine1946
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   Posted 1/15/2011 9:38 AM (GMT -6)   
     Stephanie, I was diagnosed with osteopenia in my 50's.  I was diagnosed with ulcerative proctitis at age 52 and had taken soooo much prednisone up until my operation at age 63.  You were wise to get that operation before full blown osteoporosis set in.  Had I known that all those meds were for naught, I would have had that operation ten years ago rolleyes .
     Do you know what the reading was on your dexascan?

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 1/15/2011 10:37 AM (GMT -6)   
No, I don't remember. It was a year ago.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 1/15/2011 9:53 PM (GMT -6)   
     Nascar...do you know for a fact that your bone density  has improved since you started Actonel?  Do you also take Calcium?  And if so, if your bone density has improved,  how do you not know it is from the calcium?  Just curious.

Janiepain
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   Posted 1/16/2011 7:04 PM (GMT -6)   
Christine,
I was diagnosed with osteopenia 4 years ago, took Evista for almost 2 years and at my next bone scan, was diagnosed with osteoperosis. about one and a half years into taking Evista, I started having alot of pain in my legs. I was only 53 and pretty active, but thought I must have the beginnings of arthritis. After my scan showed Evista didn't help at all, I stopped taking it and my legs stopped hurting immediately! For the past two years I have taken calcium and Vitamin d only. I have alot of trouble with acid reflux, so my only option now is reclast. I was scheduled to have an infusion a year ago and chickened out, which was a good thing because about 2 months ago I broke a crown and needed to have the tooth pulled and a bridge made. My dentist really discouraged me from taking recllast and said she had one patient who broke a tooth and needed to wait almost 8 months before she could fix it. She said the poor woman was in alot of pain and kept getting infections, but she couldn't do much until the reclast was out of her system. She also said that the infusion type drugs stayed in the system much longer than the tablet type meds, I have another scan scheduled for next month and I'm really afraid of what it might show.

I am fairly active, but don't have a steady exercise routine. What type of weight bearing exercises are good? I do walk fairly often, but that's about the extent of it....

Janie

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 1/17/2011 9:57 AM (GMT -6)   
     Janie....after the responces to this post I know now for a FACT I am NOT taking any drugs to rebuild my bones.  If calcium with D  and the weight bearing exercises don't do the trick, well then, so be it.  I have an appointment with my family doctor this afternoon and I can just bet she is going to push for me to take one of them.
     I don't exercise enough in the winter.  I have two pound weights which I use in the family room and try to walk in place for awhile.  We have a treadmill but it is downstairs and it is soooo cold down there.  We also had quite a bit of snow over the past few weeks, so we couldn't get out to the mall for our walk.  As soon as the weather breaks, we walk a lot around the neighborhood.

suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 1/17/2011 10:12 AM (GMT -6)   
Christine and Janie,

You need a consistent program of weight bearing exercise, winter or not! I suggest you both sign up at a local gym and get started with a personal trainer. Using dumbells in 5,8, and 10lb range is a good place to start. I work out with weights 3x per weeks and in order to build bone you're going to have to beef up your exercise program.

Sue

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 1/17/2011 3:21 PM (GMT -6)   
     Sue, just came from my doctor's office.  The MRI showed THREE compression fractures.  I know I had one back in 04 because of a bad fall on my rear end.  The dexascan was worse too...it went to -3.9 from -3.5 in Dec of 08.  Of course I was on that darn prednisone from March of 08 through the month following my operation, July 2010.  That is a heck of a long time on prednisone.  My doctor is very concerned.  She wants me to see an endocrinologist.  Apparently, my suggestion of a weight bearing exercise program and the calcium just isn't enough in her opinion.  She suggested Reclast.  I'm so confused eyes !

Janiepain
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Date Joined Jan 2007
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   Posted 1/17/2011 10:57 PM (GMT -6)   
Christine,
Sorry to hear about your MRI. I'll be anxious to hear what you decide about reclast. If you have good teeth, the decision will be easier. I've had so much dental work done since my 20's that I know I'm not a good candidate, but it seemed like the only thing I could take. I had an appt. with my gastro dr. today and we discussed this issue. I've been taking protonix for acid reflux for several years and some doctors have suggested that's possibly one of the reasons I have osteoperosis. Because I have Barrett's esophagus, I'll always have to take protonix, but now my Dr. said there's an inhaler they are recommending to patients for osteoperosis, I think it's called miacalcin. I googled it and apparently it's considered a mild drug for osteoperosis, but can cause some side effects. I'm going to talk to my gyn more about it next week at my yearly appt.

Sue,
My doctor recommend I go to the gym and have a personal trainer show me the exercises I need to be doing. I love in a condo and have a gym in my building, so I just need to know what to be doing. I'm going to call tomorrow and try to find a personal trainer. I'm really nervous about my next scans. Thanks for the advice.

Janie

esoR
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Date Joined Jan 2007
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   Posted 1/18/2011 1:01 AM (GMT -6)   
Hi,

There are major class action law suits against several of the bone drug makers. SOme of these drugs literally dissolve your jaw bone and the femur (the strongest bone in the human body!) I Know Merck is being sued in Canada along with two other drug makers here in the U.S. I think.

What all of these drugs do is halt the natural process of bone regeneration and densen the bone we have. If a person took a bone drug for 10 years, what they would have is dense old bone that stopped forming new cells as of the day they started taking the drug. Then if they fell, reportedly the old bone would break because it would be old, dense, yet brittle bone. WHere as if you just stick to Calcium, Vit. D (about 2000 IU per day), be sure your vitamin A is not too high as this weakens bone, use estrogen replacement, AND do the weight bearing activity, and let your bones keep regenerating new cells as mother nature intended, then if you did fall your chances of having a fracture would actually be less because newly regenerated bone would be more pliable like a new green twig is less likely to break than an old brittle piece of twig.

This has been researched a lot and is explained in the book Save Our Bones.

These bone drug makers are making fortunes and killing people and are now being sued. Also an endocrinologist told me if you keep getting bone scans until you cross the line from osteopenia into osteoporosis then your insurance premiums can go up. Have not had this experience, but I don't intend to find out. Am still at osteopenia and plan on no more Dexa scans. I will stick with the Vit D, monitor Vit A to be sure not too high, have 3 helpings of calcium per day and do my exercise. I was the one who was severely injured in what turned out to be an unneeded pelvic reconstruction surgery and as a result lost the use of my colon and rectum and am lucky so far my ileostomy is working because my small bowel had been injured too. So, my view of medical marketing and so on is admittedly colored, so I am planning to resist taking anything that is not natural. A LOT of learning way too late for me.

If on the other hand a person has taken prednisone and Dexa gives seriously bad numbers, I can see why that person should do some type of research and maybe try something. Everything in the medical world these days is sooooooo two sided. It's like we're darned if we do and darned if we don't. Good luck with this decision.

Rosemary

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 1/18/2011 8:08 AM (GMT -6)   
      Rosemary, so very, very true.  My former GI doctor was always telling me how bad prednisone was for me and how he didn't want me on it, but then he would always prescribe it for me because my ulcerative proctitis just wouldn't come under control until I took it.  If I continued going to him, he would still have me on some other kind of drug along with the prednisone..ugh.
      I take 1200 mgm of calcium with "D daily.  I thought 2000 was too much.  My mom had kidney stones which were formed from too much calcium.  I sure don't want that to happen.
     I don't take hormonal replacements.  I went through the change about twenty years ago, in my early forties.  The doctor had me on hormonal replacement therapy for about three months.  I started bleeding, my breasts became lumpy and I thought, the heck with this crap, and stopped taking it.  Glad I did too from what I read about it causing breast and uterine cancer.
      darned if ya do and darned if ya don't is right shakehead .
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