living with 12 inches of bowel

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New Member

Date Joined Jan 2011
Total Posts : 3
   Posted 1/15/2011 6:25 PM (GMT -6)   
First of all, wow-- finally think I found a place to not feel so out of place. cool
Ok- after 7 surgeries on the intestines, I have 12 inches of large intestine left.  I have an ileostomy which is supposed to be reversed in a few weeks, but I am interested in what life is like/advice for what things will be like when I am put back together.
thanks, jules

Forum Moderator

Date Joined Feb 2006
Total Posts : 5698
   Posted 1/15/2011 8:22 PM (GMT -6)   
What was the reason for your surgery?

I have no large colon and no rectum left and have a jpouch constructed with 9 inches of small intestine. I function just fine. Frequency is higher than those with a colon but doesn't interfere with my daily routine. I imagine you still have your rectum? You can probably expect higher frequency. My surgery was for refractive ulcerative colitis.


Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 1/16/2011 5:28 AM (GMT -6)   
Welcome, Jules! I can't answer your question, because I had my colon and rectum removed due to Crohn's and have a permanent ileostomy, but someone will be along soon to help you out! I just wanted to welcome you to the colon-free zone! smilewinkgrin
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

New Member

Date Joined Jan 2011
Total Posts : 3
   Posted 1/16/2011 10:06 AM (GMT -6)   
My original surgery was for diverticulitis.  I went home with an undiagnosed leak and returned to the hospital 2 days later pretty septic-- from there I had a colostomy and a midline open wound.  I had a few subsequent surgeries to get back together and wound and hernia repairs.  In November, I had a leak from my original anastomosis and lost most of my colon.  i have an ileostomy right now.  thanks for the responses!!!!
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