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Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 1/18/2011 10:30 AM (GMT -6)   
     My daughter is a certified personal trainer although she no longer is in that field.  She returned to her former occupation working for the federal government.  However, she told me she could work on an excercise regimen for me.  I hate our local gyms, they are overcrowded and not enough equipment.
     By the way, what do you do for a living?  Your life seems so exotic!

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 1/18/2011 11:25 AM (GMT -6)   

Excellent! There's nothing better than getting a personal trainer for free!! The only difficult thing about not going to a gym will be your ability to motivate yourself in your own home! But if you can maintain a consistent program in your home, it's better than fighting for equipment at the gym.

I work for a major university and run a department with about 250 staff. My life isn't that exotic but I am curious and I love to travel and I love adventure. I also love to exercise which has the added health benefit.


Veteran Member

Date Joined Apr 2009
Total Posts : 587
   Posted 1/18/2011 3:30 PM (GMT -6)   
Can I chime in??  Sue I also was curious what you did for a living.  I tell people about you all the time when I talk about the surgery and they think my life will be less than it was before.  So thanks for living such a full life and being such a great example.
Christine, I think I finally figured out the appliance.  I was ready to have your husband come over and help me put it on, lol.  Anyway, I took it as a sign that I got some samples today from coloplast.  The ostomy nurse gave me samples of those, but put me in a marlen.  I don't know why, but it was very uncomfortable and I felt I had to hold onto it because it was so heavy.  It also caused me to hunch over.  Anyway, I decided to try the coloplast (I think that's the name) since I had a bunch.  The first time I used the ring and it didn't work.  The next time I tried it without the ring because in the directions it doesn't say to use one.  Well, it's been 4 hours and no leaking or burning.  It is comfortable almost to the point of me really not noticing it.  I have the one that is convex.  It pushes my stoma right up!  I am SO happy.  Now, I hope it stays put for a few days.
Thanks for letting me chime in.  I need to get to the gym, but am a little afraid.  I think I'll start just walking the track at first.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 1/18/2011 5:52 PM (GMT -6)   
A lot of my current friends I have made post surgery. I don't really talk about my surgery unless someone mentions that they have IBD or know of someone with IBD. I travel with friends, doing 100-200 mile hikes and besides drinking more fluids than everyone else, no one really knows that I am plumbed differently. Sure I stop to use the woods more frequently but they assume I am just peeing. I have never let surgery define me. The people who knew me pre-surgery, let surgery define me but most of those people are either not in my life anymore or have forgotten that I am altered. I just returned from a month-long trip scouring SE Asia. I never have told my travel friend about my UC or surgery. She spent an entire month glued to my side and didn't notice anything unusual about me. That's the way I prefer it. If I feel someone needs to know, I will tell them. Otherwise it seems that I tell people and they judge me based on the information. Most times I just tell my active friends that I drink more fluids than the average person...but I don't tell them why.

For the most part I would say that now 10 years later, even my family has forgotten about my surgery!!!


Regular Member

Date Joined Jan 2010
Total Posts : 106
   Posted 1/19/2011 9:12 AM (GMT -6)   


I couldn't agree more! In fact I told several of my curious family I would discuss anything they wanted to know about my plumbing but it is not who I am...Its just something I had to do to get back to who I am! I also battled colon cancer befor the the Illeo and told them the same thing. This is not ME it's just something that happened to me! I do not post as often as I should but God does keep people in my lifes path that are dealing with colitis and even a recent person who is fighting the same cancer battle I was. I try to show and tell them there is a light at the end. I am happy to be back outdoors enjoying creation! Keep up the good work all!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 1/19/2011 11:01 PM (GMT -6)   
i always thought sue had some kind of super awesome exciting job too! all that hiking sounds so exotic, like maybe she was an explorer or something.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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