Stoma Condition-new to this group

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Medically Maligned
New Member

Date Joined Dec 2010
Total Posts : 13
   Posted 1/18/2011 4:43 PM (GMT -6)   
I've been in the crohn's group for a little while.  If anyone wants to know my history, I guess you can check there.  I've had a permanent ileostomy for 41 years.  I have been wondering if anyone may be having a similar problem that I've been having with my stoma.  All over it small bumps have been growing on it.  In addition to these, along the base of the stoma, a very painful, red and bloody raw area has appeared.  Has anyone experienced anything like these?  Thanks for your help, Gary

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/19/2011 11:50 PM (GMT -6)   
Sorry I don't have any insight...what does your doctor think? Could it be active Crohn's?
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 1/20/2011 2:50 AM (GMT -6)   
you must let a stoma nurse see this. any change of colour/looks of the stoma should be checked by your stoma nurse. what you're describing sounds pretty nasty to me.
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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