otc, but I needed to share

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Chasblah
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Date Joined Feb 2007
Total Posts : 788
   Posted 1/18/2011 9:03 PM (GMT -6)   
Hi all.
I got some worry-some news today.
I went for that follow-up ultrasound (last one by perinatologist, baby was hiding under my stoma, so Dr. said he couldn't see all of her heart that he wanted to. He told me he didn't anticipate anything wrong, but to come back for sure.)

Well, it turns out he does think there may be something wrong with her heart. He wasn't very specific, but said he didn't see all of the anatomical parts he thinks there should be by now. So, he's sending us to a pediatric cardiologist to evaluate her heart.
I was in such shock, that I didn't ask many questions. I totally didn't expect anything like that.
He told me it could be anything from a chromosomal abnormality to something just specific to her heart or even that nothing is wrong, and they'll think everything looks ok.

I am very scared. the nurse is supposed to call me sometime to set up an appt. for the next ultrasound, and I'm just a nervous wreck.

I know this doesn't have anything to do with my stoma, but what about all those CT scans I had just a couple of years ago, or the Celebrex I was taking until I found I was pregnant (I was about 4 weeks), or the allergy meds, or the inhaler.

I feel so helpless and so worried.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/18/2011 10:49 PM (GMT -6)   
oh im so sorry to hear that, its so scary to think something might be wrong with your baby.
but please don't blame yourself.  its important to have a healthy mommy and if you need meds to be healthy thats very important.
I will be thinking of you, please let us know when you find out.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/19/2011 1:47 AM (GMT -6)   
Chassity,
I truly hope and pray that everything turns out to be just fine and that your doctor is just being overly cautious. My sister's OB told her that her firstborn might have Cystic Fibrosis and had her worried sick for months. When the baby came, she was perfectly fine. All she had was a mucus plug in her intestine that needed to be suctioned out. I think with the fear of malpractice suits, doctors disclose every possible thing that might be going on, no matter how slim the chance, so they cover themselves, but unfortunately, they instill fear in people. I hope that's the case here. Please keep us posted on what you find out from the cardiologist. You and your hubby are in my thoughts and prayers.
Love,
Cece

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 1/19/2011 6:41 AM (GMT -6)   
Chassity,

i hope everything is alright with your baby. Cece is right, sometimes drs are over cautious just for the slightest possibility that something may be wrong. hope all is ok, keep us posted.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 1/19/2011 8:10 AM (GMT -6)   
Thinking of you Chassity and hope all goes well, look after yourself
(((((((((HUGS)))))))))))

Doreen

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/19/2011 9:06 AM (GMT -6)   
Chassity,

Oh, I am so sorry! You really shouldn't be blaming yourself and questioning your past behaviors. You did nothing wrong. I know it must be really terrible to have to sit with this information and wait for more results. We are here for you if you need a shoulder to lean on.

Sue

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/19/2011 9:26 AM (GMT -6)   
Thank you all for the support. I just needed to vent.
I think it sucks that I was on tons of meds during my first pregnancy, and my daughter was perfect, but I've been on almost nothing for this one, and this baby may have problems. shakehead

I'll keep you posted. the Dr.s office still hasn't call to set up an appt.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/19/2011 9:34 PM (GMT -6)   
ha ha. i just realized that I wrote OTC in the title instead of OT. hm. guess I was a bit distraught.
Chassity
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/19/2011 11:22 PM (GMT -6)   
Hang in there Chassity. We'll be here for you...try not to worry about the 'what ifs'...wait for the facts once you've been evaluated by the cardiologist.

Please keep us posted ((((HUGS))))
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

rumple
New Member


Date Joined Jan 2011
Total Posts : 12
   Posted 1/23/2011 2:03 PM (GMT -6)   
Hi!
Im new to the forum. So sorry to hear you may be having problems with the baby. I actually plan to get pregnant in the near future as well. I have an ileostomy and have had it since June. I know this is off topic, but I found this post while searching for info on prenatal vitamins. What prenatal vitamins do they have you on with your ileostomy? I'm worried since so many are large and I have been prescribed one that have fish oil and it smells something terrible. Any suggestions? Once again I am very sorry about your baby. Hopefully they are just being careful and that your baby is healthy!
Take care

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/23/2011 3:24 PM (GMT -6)   
Welcome Rumple.
I think I just answered your email! lol. But, I have not had any problem with prenatal vitamins. I've tried a bunch. I would ask your OBGYN for samples. Mine gave me about 5 different kinds to try, and I can't say I liked any one better than the other. I am using Prefera OB + DHA, only because I told the OB that I didn't care, and that's the one she gave me. It is a brand name though, and with my insurance, expensive. I think next month I will be going to a generic one.

My dr.s appt. is Tues.
Chassity
29y. married with one beautiful daughter born 11/20/07
-2002 dx with severe pancolitis u/c; 12/19/08 had total colectomy; 12/25/08 emergency surgery due to abscess-had to redo ileostomy and switch to left side; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
Feeling Fabulous Now with my ileostomy!!!!!
Pregnant with second baby due 5/26/11

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 1/23/2011 5:41 PM (GMT -6)   
Sending you hugs and good thoughts for your appintment on Tuesday. The waiting must be difficult. Hang in there.

rumple
New Member


Date Joined Jan 2011
Total Posts : 12
   Posted 1/23/2011 10:21 PM (GMT -6)   
So funny that I found you twice.. Weird. Yes you did email me. Hope all is well with the baby. I guess I clung to you twice because we are close to the same age, prenatals, and have ileostomies. Small world.:) Thanks for the info so far. And good luck at the doctor's!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/23/2011 10:51 PM (GMT -6)   
i've been trying to figure out why you had OTC, lol.
As for prenatals, i took flintstones and a folic acid supplement. OB told me flintstones were the best one to take! and easier on your stomach. The walmart brand taste awful though.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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