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Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 1/25/2011 7:36 PM (GMT -6)   
Well, the news was what we feared.
She has complete AVSD, which is arterioventricular septal defect. basically, a hole in her heart. It is repairable by open heart surgery when she is about 3 months old, assuming the defect will not get worse. This is aweful in itself, but also that is has a strong association with down's syndrome. The cardiologist said that if he sees 15 of these defects per year, then only one will not have down's. That's all we have to go on, since we declined early prenatal testing for down's and husband is declining amniocentesis (I'd do it, but want to respect his concerns).
I know we should be used to getting bad news, and being in the small percentile that sucks, but this is really hard to swallow.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/25/2011 8:05 PM (GMT -6)   
((((BIG HUG)))

sending love...
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 1/26/2011 12:48 AM (GMT -6)   
oh Chassity, i'm so sorry. prayers your way the surgery fully cures her (((HUGS)))

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 1/26/2011 8:11 PM (GMT -6)   
i'm so sorry, that must be so hard to hear. I will def be thinking of you and your sweet baby. I hope all turns out well.

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 1/26/2011 9:27 PM (GMT -6)   

I'm sorry to hear that. Praying for you and your baby. Rosemary
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