post ileostomy reversal

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New Member

Date Joined Jan 2011
Total Posts : 4
   Posted 1/27/2011 10:06 AM (GMT -6)   
hi anyone,
I'm a 44yr old soman who had my reversal on the 13th Dec 2010, I had a total coloctomy in sept 2009 and first part of reversal op in june 2010.
Where do i start...........I thought that having an ileostomy bag was the worst thing that could have possible happened to me, although after a year long struggle with ulcerated colitis my health did get so much better, I couldnt wait for my reversal and to get rid of that bloody bag, but things are so not how i'd thought they'd be and i'm now wishing that maybe the bag wasn't so bad after all.
This last op although seemingly the smallest and easiest has knocked me for six, constantly going to the toilet for at least 3 weeks after in constant pain with what i then found out to be wind (who knew that could be so painful) and now soreness and everything else that goes along with going to the toilet so often. i've constantly got the feeling that i need to go and never know when i actually need to or if it's just wind. And always feeling tired, as i'm not sleeping well because i'm constantly up in the night.
I know at the moment i'm feeling sorry for myself and I feel that although good friends they must be sick of me going on but this just isn't what i expected from this, and after being ill for nearly 3yrs now, i just want to be healthy and NORMAL again.
Thanks for listening

Veteran Member

Date Joined Mar 2008
Total Posts : 624
   Posted 1/27/2011 12:28 PM (GMT -6)   
Hi i totally get you - it is hard when things turn out different and to what is totally unexpected - although my expereince slightly different.
Do remember it is early days and things could get better - that is what is told to me anyhow and give it several months to a year. But it is hard dealing with a sore bum and pain etc... like myself -  though i didnt have the colitis.
do hang in there for a while and speak to your doctor to understand why you are getting such pain etc.  give it time.  i am hoping not to have another surgeyr to have the bag back but wont hesitate if i am not at least 50% improved in several months.
take it easy. x
Karen 48 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR surgery for mucosal prolapse/Obstruction/diagnosed slow transit constipation
2007: Sigmoid resection-partial volvulus resulting in worsening of colonic inertia (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal
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