New Stoma! (revision)

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80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/27/2011 9:29 PM (GMT -6)   
Hi all,
I haven't posted much lately but I've been lurking and keeping up with you all. I posted in Dec because I was in the hospital again with my 4th ostomy-related surgery in  8 months. I had another obstruction where my intestines kinked up at the stoma site. This time instead of revising my stoma they just put a tube in it and straightened out the obstruction. My surgeon is confident that i can do that on my own if I should get any more obstructions (yikes...but better than being hospitalized).
 
That said, I went in last week for a final (hopefully!) surgery to basically try to put some sort of mesh around the intestines near my stoma to stop it from twisting. I was so ready to get all of this over with. I haven't been to the post op appt yet, but my surgeon told me (as I was waking from surgery) that he wasn't able to do the mesh becuase it may cause more problems, but thankfully he did re-do my stoma (a wonderful and welcome surprise!!!) to make it stick out more.
 
I had been using convexity because my stoma was really small and barely stuck out. It was stressful...I had problems...I had leaks...blah blah...but now my best bud Zoe sticks out much farther! She's so big; I'm not used to her!
 
My question is this: now that my stoma sticks out so much, it's the first thing I hit when I brush by that area. When it was small, I would hit the ring in my two-piece convex thing before I hit my stoma, so I felt like my stoma was "safer" from injuries...does that make sense? I'm nervous that I'm going to harm it. Is that a real concern? What are people's thoughts?
 
Thanks all :)
 
Stephanie and Zoe

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 1/27/2011 10:06 PM (GMT -6)   
Oh, to have my stoma stick out again. After my colectomy my stoma was prolapsed (stuck out and hung down). Had surgery to fix it. Was great while it stuck out but retracted a year later. Had surgery to fix it. Good for a few months but is retracted again. While t stuck out correctly, I had no leakage problems. Now that it is retracted again I must use convex wafers. The wafer is hard and uncomfortable....as compared to a flat soft wafer. And the convex sicks out farther than a flat wafer. I saw no danger to my stoma while it stuck out...and it does now at tmes. I have an appt with a new surgeon to discuss surgery to make it stick out properly....again. I don't think a stoma is as delicate as one might think.......just my opinion.


Dan

jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 1/27/2011 10:39 PM (GMT -6)   
I had lots of concerns about the safety of my stoma at first too so I asked my surgeon about it and the only thing to worry about would be a very hard direct hit to the area. I'm pretty active so I've been in many situations where my stomach was hit by something, including falling directly on it when snowboarding, and I've had absolutely no problems whatsoever.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 1/28/2011 8:45 PM (GMT -6)   
Yeah, I guess plenty of people have one that sticks out and I don't think I've ever heard of many problems from them.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 1/28/2011 9:37 PM (GMT -6)   
Hope your new stoma solves your issues. That was scary all you went through. Just get used to avoiding bumping that area. Mine only sticks out about a half inch but I just sort of adjust my movements to avoid things hitting in that area. Good luck. Rosemary

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 1/30/2011 2:54 PM (GMT -6)   
I had my permanent ileostomy surgery on November 8th. Before my surgery, one of my nurses recommended that I ask my surgeon for a stoma that was a little longer. My surgeon said he did them all like that anyway, as people tended to have more leaks with short or flush ones. After the post-surgery swelling went down, my stoma ended up being about 1 1/4 inches tall. I couldn't be happier with it. I have only had one leak since my surgery, which was more due to drainage from my incision weakening the adhesive on my skin barrier than anything else. My stoma flops down towards the bottom of the pouch, so when it poops, the stool is deposited past the edge of the hole I cut in my wafer. I think this helps prevent leaks. However, when I wear a ostomy waist wrap or pants that aren't that loose, my stoma looks kind of squished sideways against the skin barrier and I worry that I might be hurting it. So far nothing bad has happened to it and my surgeon reassured me that this isn't a problem. The only problem I have had with is that a tiny strip of peristomal skin gets a little irritated in the area right beneath my stoma (under the area where it flops over). I think stool gets trapped there. No matter how tight I cut my wafer and how snuggly I get my Adapt ring, I still seem to get this irritated spot. Maybe things shift when my stoma flops over. It is no big deal though. A little powder every few changes keeps it in check.

Right now I am using a one-piece pouch since I am still having issues with my abdominal incision healing and my nurse thinks it is best until this resolves. I wonder when I switch to a two-piece if my stoma will rub on the plastic ring as it hangs down?
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 2/1/2011 5:42 PM (GMT -6)   
Blueheron
When my stoma was prolapsed (stuck out too far) I had the same issue with irritation and ulceration where the stoma flopped down. I could find no way to stop the ulceration. I don't like my retracted stoma but prefer it to a prolapsed stoma.

Dan
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